I know I have probably have asked this before but asking again. Does anyone have swelling of feet, ankles and legs from Ibrance or your hormone replacement?
My oncologist says it’s not from my meds but my other doctors say it is. Really need help. I’m on 40mg of lasix still swollen.
Looking for answers. Thanks
Hi,
I had swelling in my leg from Letrozole and Ibrance. My oncologist said it was from the meds.
Jade
Jade. What did you do for it? My 40mg lasix doesn’t do a thing
My oncologist referred me to a PT that specialized in lymphedema.
What did they do
They did manual lymphatic drainage, massage, and showed me different exercises to help. I also use cute compression socks,
Did it help? Did they say what causes it? Where do you live so I can find one. I live in Indianapolis.
It did help, we think the cause was the meds. I live in Vermont and go to the University of Vermont Medical Center. I hope you are able to find someone in Indianapolis.
I ordered on line ginger oil for feet and ankle swelling and this is my second day and even my husband says my ankles have gone down a little. I hope it continues.
My oncologist swears it’s not from my meds but I had no problem till I started using the Ibrance and hormones.
I pray it will continue to help the swelling and take care of the lymph problem. The advertisements said it was for the lymphoma so hopefully it will heal it. We always pray for miracles don’t we.
Thank you So much
I’m in occupational therapy, and I can tell you that there are therapists trained in lymphedema management everywhere! Don’t worry...you’ll find one! When I was treating my patients for it they seemed to find the process relatively pleasant...it is called retrograde massage, and it helps move the lymph back towards your lymph nodes. They will teach you how to do it to yourself! Good luck.
Thank you so much. Do you know anything about the ginger oil? This is my third day and you can see the change in swelling of my ankles. Until I find a dr to treat me I’ll continue to use it.
My oncologist swears it’s not from my Atrimidex or Ibrance. But he’s the only one that doesn’t agree. He said he went around to all of his colleagues and they agreed with him.
I’m going to tell him what I have learned from this site.
Thank you for your help.
Yes, I have had it with my endocrine treatments. I found 20-30 minutes foot bath in epsom salts very good. Also cycling or walking - a bit uncomfortable to start with, but gets the fluids circulating again. Legs up above your heart works also.. but a slowly. Mine seemed to wear off, and I have itching/hives on other parts of my body. Oncologists seem to dismiss this distressing side effect. I hope this helps.
I have swelling of the legs fluid build up which is caused through letrozole i have neen on these tablets along with arimidex to start with then exemerstane then letrozole since 2010 my oncologist changed me over due to the agonising side effects itching. Insomnia. Trigger finger. Joint pains and swelling all are side effects of the tablets. I was taken off them 4 days ago so hoping some of these will subside as im now using a walking stick as need a hip replacement to me they are all poison. My gpput me on furosemide tablets 40mg 1 morning and 1 with lunch it has helped but still one leg from the knee to the ankle is a strange shape had an xray on it but says nothing suspicious so must be where fluid is accumulating.
Thank you
Thank you
I have it in my right ankle mostly. Just showed up one afternoon. My doctor says it could be from the chemo drugs (Abraxane, tecentriq) or from my fentanyl patch. Can't do without any of those things so . . .
I did get a Rx from the doctor for compression socks - they are pricey so why not have insurance cover them. You do want to be measured professionally before ordering.
I do manual lymph drainage on myself every night while watching a show - it is good to go to a lymph specialist to get trained but there are videos that show you also. My insurance covers the lymph massage but the only place that does it in my area isn't covered. Oh well, I paid cash for one session and learned a lot.
I also got a mini trampoline and jump on it for 5 minutes at a time through-out the day. That is a good method for circulating lymph. You don't want the lymph to accumulate for too long or you get tissue damage from the excess proteins in the lymph. Do not take diuretics! They just concentrate the protein and cause more tissue damage. Drink lots of water.
It is one more thing to deal with and I was so discouraged at first but you rise up and deal with it and thank God for another day. Its just a different kind of day ; )
All the best,
Frederica
I have to take diuretics because I've been in hospital for retained water and couldn't breathe.. I went on you tube and they had instructions by 2 Drs illustrating the exercises. If you get a chance go in a take a look at it and let me know what you think. I also started using Ginger oil that I ordered on line. This is my 3rd day and even my husband could tell a difference in swelling going down. I appreciate you answering my query. If you look at the you tube film let me know if these are the same exercises you do. Did your swelling go completely down and stay down? Thanks Linda
I love all things ginger! I'll have to look up the oil. Breathing is pretty important so I would go with the diuretics for that one! It was just my lymphedema specialist that told me not to use it for lymphedema.
I'm not sure which YouTube videos you might be watching, there are so many. As long as it's put out by a trained lymphedema specialist I would go with it.
The swelling has gone down. I do wear my compression sock most days, but this weekend was my daughter's wedding and I didn't wear it for the whole day. The swelling wasn't great by the end of the day but not as bad as it had been.
I wonder why she said not to use oil? It’s working better than the 40 mg lasix so I’m going to continue to use it.
Does she sell some kind of a product that she might Prefer you use?
She said not to use a diuretic to get rid of fluid. Oil is fine.
Hi,
I am not on the same meds, but did have leg/ankle swelling. Wasn't prescribed Lasix, but I reduced sodium intake and started juicing and using diuretic herbs and fruits. It has helped drastically.
Watermelon
Cucumber
Lemon/lime
carrot
Ginger
Rosemary
mint
Parsley
Also been using essential oils for massage- tea tree, lavemder, rosemary, eucalyptus, chamomile.
There are many more oils and fruits/veggies.
Best to you.
Nama
I'm on a sodium free diet and lots of water fresh fruit and vegetables. None of it worked. This has gone on for one and a half years. My oncologist says it's not meds but all my other drs says it is. I feel like I'm on my own.
Sorry to hear this. But keep trying different things. The docs can be confusing and contradictory- and they don't always know - lots of guessing.
Hope you find a solution. You might want to look into the ingredients of the meds you are taking.
Best to you.
Nama
Thank you
I have swollen toes from Ibrance. Super uncomfortable. My onc. said try to walk each evening (when swelling is worse) then elevate feet above heart for at least 20 minutes. It has helped a bit. Good luck.
Thank you
