Doctor recommended Xeloda. I'm very concerned about starting treatment. I was first treated for over a year with ibrance and letrozol.some progression and put on Immunotherapy Clinical Trial
After first arm,there was some progress,put on second arm and there was progress in the liver. Woukd appreciate if anyone could share experience with Xeloda. May you all be blessed with well being and complete recovery
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I was on Xeloda with minimal side effects. I got about 1 year efficacy on it but I know others that were on it successfully for longer than that. As an MBC patients, it is not uncommon to be one one regimen for a while until progression and then changed to something else.
I've been on Xeloda since June 2019 and am very happy with it, both in terms of minimal side effects and kicking back the cancer. I chose Xeloda over other options because I also had increased liver mets and Xeloda seems to be especially effective there because it is metastasized in the liver. My CA 15-3 cancer protein marker has dropped 75% since starting. I have way more energy than I did during my short time on Ibrance. Only side effects are the hand/foot syndrome but I find it very manageable. I suggest you put "Xeloda" in the search box here, you'll find a lot of old posts with good feedback. I also like Xeloda because the dose is based on body mass, not one-size-fits-all. I take 1300mg morning and evening, 7 days on, 7 days off. Some people take it for 14 days on, 7 days off.
Transitioning to a new treatment is always hard but I think you'll find a lot of useful and encouraging information here. Wishing you all the best!
Exactly! Thank u for taking the time to answer. The word "chemo" really freaks me out somehow . I started looking at older posts,helpful
May you be blessed from the one Above with good news,and complete cure
Hi MacroMom. Reading some old posts and I was wondering if you are still on xeloda and if so, how are your numbers? Did they lower your dosage as a maintence and are you still on the 7/7? Hope you are well and thank you in advance.
Hi I to have been changed to Xeloda. My oncologist started me off with 50% strength. I now am on 75%. The reason is after a few sessions I tend to start having reactions to the chemo drugs. I find this drug is easy to handle . No side effects . I'm waiting for my first pet scan and hopefully this will be successful . Take care Geulah
Thank u ,you too. Good news and complete recovery
I was on Ibrance/Faslodex for 18 months. After it became ineffective, I was switched to Xeloda and have been on it 7 months. I have very little side effects, and so far the medication seems to be working. My worst symptom is neuropathy in my feet. The toes tingle and hurt at night. I take 1500 mg each morning and night, 14 days on, 14 days off. I am not as tired as I was on Ibrance, my labs look good on blood work and liver function, so my doctor is not even ordering any scans. He goes by how I am feeling, and the blood work numbers. Good luck on this new drug. It is always scary to switch, but this has been a good drug for me to work with.
Thank u for your helpful answer,wonder if any supplements could help with side effects. Good news and a complete recovery
My naturopathic oncologist recommended B6 supplements and Curcumin to help with side effects. I also started taking magnesium because apparently Xeloda can deplete it and I was getting leg cramps. Moisturizing your feet at least twice a day and keeping them cool and out of hot water is important too. Wishing you a good long run on Xeloda!
I’ve been on Xeloda since January 2019 after 26 mos on Ibrance and then 9 mos on Faslodex. Once they got my dose dialed in Xeloda isn’t bad. Hand and foot syndrome mainly. No fingerprints and my feet are a disaster but definitely doable. Had scans 10/29/19 and the Xeloda is keeping the cancer lesions in check. No new ones and the existing ones have not grown. Skull/spine/jaw/pelvic bones. Bone Mets only since the tumor on my chest wall shrunk from the Ibrance.
I had a little over a year on ibrance with almost no side effects,I was hoping for more.in retrospect I realize how thankful I needed to be. Now try hard to be thankful for all thge things I would take for granted before diagnosis. Wishing you a complete recovery,good news!
My mother-in-law with METs to bone marrow is on Xeloda after Ibrance/Faslodex wasn't effective. Her bloodwork started improving almost right away and is continuing show positive results. She has much more energy and so far no real side effects.
Geulah, I was on Xeloda from 2004 until 2011. The new oncologist that I went to after my former one retired thought that after seven years on the drug that I should take a break from chemotherapy. She put me on Faslodex since then.
While on Xeloda, I had mild gastrointestinal disturbance initially, but it didn’t last that long. The hand and foot neuropathy was bearable.
By the way when I do have progression of my metastatic breast to bone (hip,
ribs and femur) I will go back on Xeloda.
Kathleen 99
Good to know. Just reading some old posts. I was on 125Ibrance and fasoldex for almost 2 years and it stopped working. Now on xeloda for mets on spine, hips, ribs. How are you doing 3 years later Kathleen?
P.S. Fear of the unknown is very real, but I don’t think that you will have a bad experience with Xeloda.
I wish you a good experience and many blessings as you continue your treatment.
Kathleen99
Thank u so much for the encouragement. May you and everyone be blessed with good news ,well being and complete recovery!
99 was the year that I was diagnosed with Metastatic breast to bone cancer!
Sandra, unfortunately I was diagnosed with Multiple Myeloma in June of 2018. Things are stable though.
Please those who were given Xeloda for tumors in the liver that keep growing.
Starting Enhertu 
More cancerous nodes…swollen arm
Does anyone have experience with Enhertu? I was HER2 - low in 2019 and my last liver biopsy was HER2 - 0. Planning to start Enhertu next. 
Liquid biopsy approved
