This time last year I was finishing chemo when I discovered I had bone mets. I was devastated and thought life was over.
It’s been a struggle getting used to the medication- leterzol, Ibrance, zomata and zoladex- and there’s been days I thought I couldn’t do it.
But this week I have gone back to my job as a head teacher, now have a wonderful job share partner , am about to cook dinner for me and my kids and get them ready for returning to school, went sailing at the weekend and feel I’m starting to get my wonderful life back. Something I never thought possible.
So wanted to share because I never , ever thought I could do all this. I’m more tired but it just means I pick and choose and prioritise .
🌈👍
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Glas0824
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Lovely and inspiring. Thankyou for sharing. When I was a bit down and moaning that 'I cant do anything' my daughter put things in perspective for me and said no mum, all its done is slow you down a bit. She was of course right. Obviously some are suffering a little more than others and I dont want to minimize that in any way - just grab whatever life we can when we can 😆.
I agree and posted because I have been there, really suffering both physically and emotionally. If someone had told me I’d be where I am I would not have believed them. Now it’s time to put my feet up, bath and then bed!
You have made my day. Like you I have only only mets, im a head start teacher and I have started back work. I cook for my family and I have good and bad days but im still her.
Well done getting through that first year...it really is awful
I’m on the same drugs apart from zoladex but I have a lot of pain from bone mets BUT I’m still here and doing my best which is all we can do
Barb xx
Hi,
Thanks for your encouraging post. I agree that life does go on following a cancer diagnosis, even a metastatic cancer diagnosis. Work and family life can continue, which can be hard to get your head around when all you can think about is dying. But I don't feel that way anymore. My motto is: "I'm too busy living to think about dying."
Thanks, Fay! I do my best to be positive. It makes all the difference. I don't feel as tired, hardly ever get achy or stiff and I feel very well physically, emotionally and mentally.
Thank you for posting this. I’m having a PET scan today and of course feeling down and gloomy because my markers have risen 22 points in 2 months and I’m dreading the results. But you have given me hope and with God’s grace I will continue to live my life. Thank you!
Thanks very much. I made a separate post about my scan results. Thank God it’s “mostly stable.” No increase in size, but while some showed less FDG avidity, some are a bit more avid. A new carinal node lit up but is not enlarged. I am happy with the results and I am on day 4 of Fenbendazole so let’s hope that works even better than Ibrance at keeping me stable. Will keep you all posted on how I do with the Fenbendazole. I love this group because there are no judgements - just pure empathy!
You are so right about prioritizing your life. If you let the unimportant things go, then life is still good. And every once on a while we need a nudge. I was moaning this morning about being more tired this summer and taking naps when I sat down. A friend about my age (72) looked at me and said, “I do that and I don’t have cancer.” Okay, I’ll quit complaining 🤐!
I nap most days and that helps so I can be social in the evening! I drink my wine and watch my programs when I’m not out with friends, lucky to be alive!❤️
Thank you for sharing this with us. I was diagnosed Dec 2018 and although it feels like a lifetime ago I’m still struggling with this “new life” but I have a great job and a loving family and that keeps me very busy. I do admit this site has given me so much hope and gives me the nudge I need to stay positive and fight!
I too was diagnosed February this year. The bone Mets, however, were caught in its infancy. Have faith in God and bone treatments are closer than you think! Check out the research on the human monoclonal antibody 15D11. It's in the hands on Amgen Pharmaceuticals. The results are amazing! I reached out to the researcher and this is what he told me. Clinical trials are underway! Take care and stay positive!
What a wonderful post ... Thanks for taking the time to remind us to stay positive and thankful...I am totally guilty of using this forum as way to ease the frustration, anger or worry and forget the equally therapeutic benefits of sharing optimism and being mindful of those little and big pleasures / victories we achieve every day, every month and for some for many years... I too have been grateful to manage to still balance work , disease and family life and I would not have it any other way while I still can! Business as usual , or at least the illusion of business as usual, is such a driving force for me ... I could not have gone through this year without the support of my workplace, friends, family and my kids' school ( and associated mum's network)... Thanks again for your inspiring post that helped me to re- evaluate things a bit !😘
great attitude - and one we should all follow. I felt the same way but I somehow am still traveling the world - working and enjoying life - with just a few bumps along the way
I have such a good feeling about bone metastasis treatments. My brother is a pilot and he takes patients to MD Anderson Cancer Clinic all the time. These patients get state of the art care and from what they tell him, they are so close to a cure! Something tells me to keep in touch with Amgen for the 15D11 trials. If you read the research, the antibody is already human so there is no waiting around in creating an antibody from mice. It resolves bone mets by 100 fold! What that essentially means is that whatever bone mets you have now, the treatment is so effective that patients may see 1/100th of their original cancer amount. Only 1% cancer left on the bones!!! I sense a Nobel prize for this up and coming treatment. So excited! Moral of the story is you never know what treatments will be available tomorrow, next year, or 5 years from now. The national institute of health has this as a priority 1 out of 9 so this is definitely getting funded! God bless you all. Please read up on the antibody. God works through these wonderful researchers!
God bless you! Life is good no matter what! Take advantage of the good days. I’m doing the same! I try not to think of anything but POSITIVE. God only knows what’s going to happen to us, but meanwhile I dance EVERY DANCE and you should too!!! We have so much to thank God for!
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