Tamoxifen : Well, after such great news... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,792 members8,416 posts

Tamoxifen

Survivornow profile image
10 Replies

Well, after such great news from my PET Scan, my Oncologist decided to put me on Tamoxifen along with my Ibrance 100mg. I explained that I had not been taking the inhibitor (I told his Assistant last month) and that it caused my RA to flare up. BUT, the side effect warning says it can cause liver cancer! WHAT?! And how many of our fellow warriors develop liver mets? Too many! Nope. Not doing it! I'll stick to my CBD oil and Panacur C with my Ibrance. I continued to have amazing results without an inhibitor.

Written by
Survivornow profile image
Survivornow
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Andersl profile image
Andersl

Pleased to hear youre sticking to what works for you. Im still on no treatment and considering panacur. 8 months since diagnosis and my only pains are from arthritis.

nstonerocks profile image
nstonerocks

May you have lasting success with this combo

MyMiracle13 profile image
MyMiracle13

Hello. May I ask how long did you take Panacur C before you saw any improvement? I am seeing my onc tomorrow and will tell him that I am seriously thinking of taking the Panacur with my Ibrance. Your success with it inspires me to try it. Hope it gets rid of all your tumors!

Maria

Survivornow profile image
Survivornow in reply toMyMiracle13

I only did the 14 day beginning (option to start treatment, instead of 3 days on, 4 days off) because I developed gastritis after taking an anti-inflammatory prescribed by my Oncologist's Assistant. I can't handle Ibuprofen or tylenol-which I reminded her of - and I had a horrible reaction to one pill!. So I've had to stop everything while my stomach heals. But I will start back up as soon as my stomach is better and I'll use it as long as I can to maintain. I firmly believe the Panacur C is what made such a tremendous difference! I've not been able to stay consistent taking the cancer drugs because of serious side effects and we've had to change them repeatedly.

Blessings on your healing!

MyMiracle13 profile image
MyMiracle13

Thanks for the reply. I hope I get good results with Panacur C as well.

MyMiracle13 profile image
MyMiracle13

Hello again. Hope you don’t mind me asking but may I know what mets you have?

Survivornow profile image
Survivornow

I started on Verzinio 125mg last Fall. I had horrible side effects, we had to stop it after the first month. Took time off the try and heal my stomach and intestines (literally took months), then started on 100mg. I got sicker, so stopped it mid-cycle. Time off again to heal. Then put on Ibrance 125mg. Side effects hit in 2nd cycle of 21 days on, 7 days off but I struggled thru. I continued that dosage for several cycles, then after my 2nd PET Scan and the proof that the cancer was healing, switched to 100 mg. I was on an inhibitor until my RA got so bad that I stopped it several months ago. I had tried to take it every other day, but that didn't help. I added Panacur C and I'm following that protocol, CBD and THC oils, using Frankincense oil on my chest and taking a drop internally daily, Frankincense water, juices. I start back on Ibrance 100 mg. today, but instead of 7 days on, 7 days off I will be taking it every other day, but I refused the inhibitor. My RA is getting worse and I am about to add oils to help that.

mariootsi profile image
mariootsi

It causes liver cancer? Are you kidding me.

Survivornow profile image
Survivornow in reply tomariootsi

Read the warning information. Unreal.

mariootsi profile image
mariootsi in reply toSurvivornow

It really is unreal!

Not what you're looking for?

You may also like...

Afinitor/Everolimus and Tamoxifen is next :(

Hi everyone - it's time for me to change treatment again. Well my time on the Hope trial was...
13plus profile image

Verzenio vs Ibrance?

First time posting, glad to find you! Does anyone have experience with the CDK 4/6 inhibitor...
MacroMom profile image

Tamoxifen

I have been on Letrizole for over a year and just can't tolerate the side effects any longer...
Gram10 profile image

Tamoxifen withdrawal

After 3 and 1/2 years of good run with 2 50 mg. of verzenio daily and one monthly falsodex...
kearnan profile image

Liver Injury and tamoxifen

I recently checked on my understanding that tamoxifen use was not associated with liver...
Hazelgreen profile image

Moderation team

See all
Jslanovich profile image
JslanovichAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.