So OMG: Just got home from celebrating... - SHARE Metastatic ...

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So OMG

Scandia68 profile image
64 Replies

Just got home from celebrating, we have NED. As in nothing!! We went through scans with a fine tooth comb (of course I wouldn’t trust a qualified radiologist) and there is nothing there other than scarring. So relieved and totally believe this is treatment plus diet. She was not totally happy with some of my supplements but I am xx

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Scandia68 profile image
Scandia68
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64 Replies
laurac1014 profile image
laurac1014

Totally awesome ! so glad to hear such great news !!!

Scandia68 profile image
Scandia68 in reply tolaurac1014

Thank you, I just can’t get it to sink in x

laurac1014 profile image
laurac1014 in reply toScandia68

I think that's natural because of the Nature of this Beast. So Enjoy this great news and celebrate.

That is phenomenal!! Congratulations! That's motivating for all of us to hear. Can you refresh my memory and remind me what meds and supplements you took? ❤️

Scandia68 profile image
Scandia68 in reply to

On ibrance and letrozole. Then added Berberine Claritin, aspirin 75 , odus choice super 8 , aloe Vera drink 2 x 30 ml and calci/D the only thing oncologist not happy with was Curcumin.

in reply toScandia68

Thanks! I'll check on the odus plus. It works....don't change :)

Maludagui profile image
Maludagui in reply toScandia68

Good news 🌺💕💃🏽 God is great.

I take curcumin too 😳

Wintervt profile image
Wintervt in reply toScandia68

Wow! So happy for you! ♥️

Do have Claritin, the allergy medicine on your list?

Nmartinez15 profile image
Nmartinez15 in reply toScandia68

I take curcumin too. My onc said that I am wasting my money, but I dont care. I still take all my supplements every day and meds, radiation. My results was not progression past month so I will keep my supplements too! Congratulations!

blms profile image
blms in reply toNmartinez15

Good for you!!! So far I have been NED for a year and go for scans next week. I have been on only letrozole since October 2018 . I take curcumin as well plus drink a mix or ginger root, turmeric root and cinnamon stick as a tea- really good. Plus many other vitamins. For now I’m staying off Ibrance to give me bone marrow a break and hold off future leukemia as long as possible. I do not buy into the fact that diet and complimentary things don’t help. It’s about your immune system doing what it was meant to do !

Nmartinez15 profile image
Nmartinez15 in reply toblms

I do tea with ginger root and cinnamon stick too. I didnt use tumeric on my tea because it too strong or maybe I am wrong. I like the spice of ginger and help me to sleep. I wish I can take only letrozole but my doctor want me to start with ibrance next month. I did take ibrance in may but put my white cells count very low and she told me to stop. The Ibrance give horrible headaches and make me feel extremely tired and weak.

blms profile image
blms in reply toNmartinez15

Yeah Ibrance beats the heck ut of you.

Yes, I thinkyou are wrong about the tumeric root being too strong. The three together are really nice, try it. slice the tumeric root thin as well as the ginger root. Don;t bother with the tumeric powder.

Nmartinez15 profile image
Nmartinez15 in reply toblms

Ok I am going to get tumeric roots today to try. I use tumeric power only to make yellow rice!

blms profile image
blms in reply toNmartinez15

the root is much better in the tea, unless you are making the golden milk. I do occassionally make that as well but I make it with water instead of milk normally. I prefer the root mix. Let me know.

Scandia68 profile image
Scandia68 in reply toblms

Good to hear you are also doing well. In the UK they won’t allow you to go back on ibrance if you stop for any reason even NED

Becca65 profile image
Becca65 in reply toScandia68

Hmm we can here - if I have to take again it will be third time. I only on letrozole right now.

Terilyn12 profile image
Terilyn12

That is SO awesome 👏🏼 ... so happy for you ♥️

Rbeth profile image
Rbeth

Wow. Where was your Mets and what meds did your oncologist have you taking. I am on Ibrance and letrozole and the letrozole is giving me daily diarrhea and intestinal pain. I also had my stomach resectioned. Gastrojujunostomy in August.

Fulvestrant stopped working at 4 months. Reenie

Scandia68 profile image
Scandia68 in reply toRbeth

I was only given ibrance and letrozole plus monthly danusomab

BakeryBetty profile image
BakeryBetty in reply toScandia68

Letrozole gave me the worst IBS. Anastrazole was much better. It didn't work for me but it might work for you. :) Letrozole is awful.

Nmartinez15 profile image
Nmartinez15 in reply toBakeryBetty

I am on letrozole only for now. Next month will start Ibrance again lower dose. My only side effects is horrible tiredness and pain in my joint and bone. If your getting IBS with constipation take plant base magnesium 2 every day

And you will see that works!!!!!

LeeannW710 profile image
LeeannW710

Awesome news! Worth celebrating!! Congrats!

Barbteeth profile image
Barbteeth

This is what we all want!!!

Congratulations

Barb xx

Scandia68 profile image
Scandia68

For now I will be happy and build my strength for when I need it later on . Xx

Francesca10 profile image
Francesca10

Omg!!!!♥️♥️♥️So happy for you

strong2018 profile image
strong2018

This is awesome news!!! So happy for you!!

MyMiracle13 profile image
MyMiracle13

So HAPPY for you! God is good.

Marieleb profile image
Marieleb

Amazing news . Enjoy!

Pollingxx profile image
Pollingxx

Fabulous x what diet please do tell

Scandia68 profile image
Scandia68 in reply toPollingxx

A very low Sugar diet, and I only eat between 1 and 7pm

kduck profile image
kduck in reply toScandia68

Great news! Will u continue on the same treatments?

Nmartinez15 profile image
Nmartinez15 in reply toScandia68

Are you doing intermittent fasting?

Scandia68 profile image
Scandia68 in reply toNmartinez15

Yes

Mindysooty profile image
Mindysooty in reply toScandia68

Fantastic news for you. Congratulations. Also gives the rest of us hope. Ive just started the intermittent fasting. Im doing 16/8. Also trying to eat a good healthy balanced diet and doing less carbs and sugar/higher protein but without obsessing. X

Moon-and-Stars profile image
Moon-and-Stars

Excellent news 💃

Justme153 profile image
Justme153

So happy for you!!! Such great news!!!

Liz1955 profile image
Liz1955

So happy for you!!!

Gaily71 profile image
Gaily71

This wonderful news congratulations!🎊🎉

Well done! That is wonderful news.

Sophie

Fantastic news! So encouraging to hear! All the best!

Selmac profile image
Selmac

Thank you Jesus. I'm so happy for you. I wish all of us could hear those words.

mariootsi profile image
mariootsi

Omg! That's amazing! Congratulations and continued ned for a long long time!

Godbeforme profile image
Godbeforme

Praising God for your wonderful news! God bless you and heal us all in Jesus name, amen! <3

RLMB profile image
RLMB in reply toGodbeforme

AMEN!!

Katherinelopez profile image
Katherinelopez

That’s great ! What type of diet are you doing ? And what supplements if you don’t mind me asking

Scandia68 profile image
Scandia68 in reply toKatherinelopez

Low GI diet

Barb5 profile image
Barb5

Congratulations that is great news!

lashinator profile image
lashinator

Amazing! Keep doing all the good stuff!!

lynnhbtb profile image
lynnhbtb

FAntastic!

RLMB profile image
RLMB

So very happy for you! Such great news!!

Survivornow profile image
Survivornow

So awesome! I am reading more and more about MBC patients with no evidence of disease! I'm praying we all get the same great news!.

LouisaMay profile image
LouisaMay

That is great news, I'm really happy for you, in fact this has made my day.

I too am on Letrozole and Ibrance and have been dithering as to whether or not to take turmeric and berberine. This article was the best information I could find and sits firmly on the fence!:

drjacobschor.wordpress.com/...

Clearly, neither the turmeric or the berberine have stopped Ibrance working for you so I think I will go for it too. I am also getting used to intermittent fasting and a low GI diet.

Sending good vibes and best wishes - may your NED last a very long time indeed xxx

Scandia68 profile image
Scandia68 in reply toLouisaMay

I only took Berberine for a short while so I don’t think it’s part of the good results but I’m continuing with it. If anything it is diet change low GI and intermittent fasting.

Pollingxx profile image
Pollingxx

Where was your secondary x

Scandia68 profile image
Scandia68 in reply toPollingxx

Pelvic bone

Fantastic news! Thanks for sharing!

p.s. You've inspired me to increase the duration of my intermittent fast and I just ordered Claritin and low dose aspirin!

1998withStage4 profile image
1998withStage4

Totally awesome! I've never had clean scans. I jump for joy just to hear the words "stable disease."

Libra48 profile image
Libra48

Awesome news! So happy to see the drugs are working for you! Thank you for sharing! I recently had a scan and got good results as well. I’ve been on Ibrance and Letrozole four months.

Kimr2081 profile image
Kimr2081

That is freaking awesome!! Enjoy and I am so happy for you!!!

Where were your mets?

Scandia68 profile image
Scandia68 in reply toKimr2081

Pelvic bone

Sunnydaz profile image
Sunnydaz

Wow! Awesome news! I’m so happy for you xo

kcc9993 profile image
kcc9993

Congratulations! For the turmeric mentioned, also a form that is hydro-soluble absorbs better.

Becca65 profile image
Becca65

This is awesome - take this you rotten cancer cells!

Staysha profile image
Staysha

Wonderful news! That’s what we are all striving for. You go girl!

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