Just got home from celebrating, we have NED. As in nothing!! We went through scans with a fine tooth comb (of course I wouldn’t trust a qualified radiologist) and there is nothing there other than scarring. So relieved and totally believe this is treatment plus diet. She was not totally happy with some of my supplements but I am xx
So OMG: Just got home from celebrating... - SHARE Metastatic ...
So OMG
Totally awesome ! so glad to hear such great news !!!
That is phenomenal!! Congratulations! That's motivating for all of us to hear. Can you refresh my memory and remind me what meds and supplements you took? ❤️
On ibrance and letrozole. Then added Berberine Claritin, aspirin 75 , odus choice super 8 , aloe Vera drink 2 x 30 ml and calci/D the only thing oncologist not happy with was Curcumin.
Thanks! I'll check on the odus plus. It works....don't change
Wow! So happy for you! ♥️
Do have Claritin, the allergy medicine on your list?
I take curcumin too. My onc said that I am wasting my money, but I dont care. I still take all my supplements every day and meds, radiation. My results was not progression past month so I will keep my supplements too! Congratulations!
Good for you!!! So far I have been NED for a year and go for scans next week. I have been on only letrozole since October 2018 . I take curcumin as well plus drink a mix or ginger root, turmeric root and cinnamon stick as a tea- really good. Plus many other vitamins. For now I’m staying off Ibrance to give me bone marrow a break and hold off future leukemia as long as possible. I do not buy into the fact that diet and complimentary things don’t help. It’s about your immune system doing what it was meant to do !
I do tea with ginger root and cinnamon stick too. I didnt use tumeric on my tea because it too strong or maybe I am wrong. I like the spice of ginger and help me to sleep. I wish I can take only letrozole but my doctor want me to start with ibrance next month. I did take ibrance in may but put my white cells count very low and she told me to stop. The Ibrance give horrible headaches and make me feel extremely tired and weak.
Yeah Ibrance beats the heck ut of you.
Yes, I thinkyou are wrong about the tumeric root being too strong. The three together are really nice, try it. slice the tumeric root thin as well as the ginger root. Don;t bother with the tumeric powder.
That is SO awesome 👏🏼 ... so happy for you ♥️
Wow. Where was your Mets and what meds did your oncologist have you taking. I am on Ibrance and letrozole and the letrozole is giving me daily diarrhea and intestinal pain. I also had my stomach resectioned. Gastrojujunostomy in August.
Fulvestrant stopped working at 4 months. Reenie
I was only given ibrance and letrozole plus monthly danusomab
Letrozole gave me the worst IBS. Anastrazole was much better. It didn't work for me but it might work for you. Letrozole is awful.
Awesome news! Worth celebrating!! Congrats!
For now I will be happy and build my strength for when I need it later on . Xx
Omg!!!!♥️♥️♥️So happy for you
This is awesome news!!! So happy for you!!
So HAPPY for you! God is good.
Amazing news . Enjoy!
Fabulous x what diet please do tell
A very low Sugar diet, and I only eat between 1 and 7pm
Excellent news 💃
So happy for you!!! Such great news!!!
So happy for you!!!
This wonderful news congratulations!🎊🎉
Well done! That is wonderful news.
Sophie
Fantastic news! So encouraging to hear! All the best!
Thank you Jesus. I'm so happy for you. I wish all of us could hear those words.
Omg! That's amazing! Congratulations and continued ned for a long long time!
That’s great ! What type of diet are you doing ? And what supplements if you don’t mind me asking
Congratulations that is great news!
Amazing! Keep doing all the good stuff!!
FAntastic!
So very happy for you! Such great news!!
So awesome! I am reading more and more about MBC patients with no evidence of disease! I'm praying we all get the same great news!.
That is great news, I'm really happy for you, in fact this has made my day.
I too am on Letrozole and Ibrance and have been dithering as to whether or not to take turmeric and berberine. This article was the best information I could find and sits firmly on the fence!:
drjacobschor.wordpress.com/...
Clearly, neither the turmeric or the berberine have stopped Ibrance working for you so I think I will go for it too. I am also getting used to intermittent fasting and a low GI diet.
Sending good vibes and best wishes - may your NED last a very long time indeed xxx
Fantastic news! Thanks for sharing!
p.s. You've inspired me to increase the duration of my intermittent fast and I just ordered Claritin and low dose aspirin!
Totally awesome! I've never had clean scans. I jump for joy just to hear the words "stable disease."
Awesome news! So happy to see the drugs are working for you! Thank you for sharing! I recently had a scan and got good results as well. I’ve been on Ibrance and Letrozole four months.
That is freaking awesome!! Enjoy and I am so happy for you!!!
Where were your mets?
Wow! Awesome news! I’m so happy for you xo
Congratulations! For the turmeric mentioned, also a form that is hydro-soluble absorbs better.
This is awesome - take this you rotten cancer cells!
Wonderful news! That’s what we are all striving for. You go girl!