So OMG: Just got home from celebrating... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer
2,643 members2,201 posts

So OMG

Just got home from celebrating, we have NED. As in nothing!! We went through scans with a fine tooth comb (of course I wouldn’t trust a qualified radiologist) and there is nothing there other than scarring. So relieved and totally believe this is treatment plus diet. She was not totally happy with some of my supplements but I am xx

62 Replies
oldestnewest

Totally awesome ! so glad to hear such great news !!!

1 like
Reply

Thank you, I just can’t get it to sink in x

Reply

I think that's natural because of the Nature of this Beast. So Enjoy this great news and celebrate.

1 like
Reply

That is phenomenal!! Congratulations! That's motivating for all of us to hear. Can you refresh my memory and remind me what meds and supplements you took? ❤️

1 like
Reply

On ibrance and letrozole. Then added Berberine Claritin, aspirin 75 , odus choice super 8 , aloe Vera drink 2 x 30 ml and calci/D the only thing oncologist not happy with was Curcumin.

2 likes
Reply

Thanks! I'll check on the odus plus. It works....don't change :)

1 like
Reply

Good news 🌺💕💃🏽 God is great.

I take curcumin too 😳

Reply

Wow! So happy for you! ♥️

Do have Claritin, the allergy medicine on your list?

Reply

I take curcumin too. My onc said that I am wasting my money, but I dont care. I still take all my supplements every day and meds, radiation. My results was not progression past month so I will keep my supplements too! Congratulations!

Reply

Good for you!!! So far I have been NED for a year and go for scans next week. I have been on only letrozole since October 2018 . I take curcumin as well plus drink a mix or ginger root, turmeric root and cinnamon stick as a tea- really good. Plus many other vitamins. For now I’m staying off Ibrance to give me bone marrow a break and hold off future leukemia as long as possible. I do not buy into the fact that diet and complimentary things don’t help. It’s about your immune system doing what it was meant to do !

2 likes
Reply

I do tea with ginger root and cinnamon stick too. I didnt use tumeric on my tea because it too strong or maybe I am wrong. I like the spice of ginger and help me to sleep. I wish I can take only letrozole but my doctor want me to start with ibrance next month. I did take ibrance in may but put my white cells count very low and she told me to stop. The Ibrance give horrible headaches and make me feel extremely tired and weak.

Reply

Yeah Ibrance beats the heck ut of you.

Yes, I thinkyou are wrong about the tumeric root being too strong. The three together are really nice, try it. slice the tumeric root thin as well as the ginger root. Don;t bother with the tumeric powder.

Reply

Ok I am going to get tumeric roots today to try. I use tumeric power only to make yellow rice!

Reply

the root is much better in the tea, unless you are making the golden milk. I do occassionally make that as well but I make it with water instead of milk normally. I prefer the root mix. Let me know.

Reply

Good to hear you are also doing well. In the UK they won’t allow you to go back on ibrance if you stop for any reason even NED

Reply

That is SO awesome 👏🏼 ... so happy for you ♥️

Reply

Wow. Where was your Mets and what meds did your oncologist have you taking. I am on Ibrance and letrozole and the letrozole is giving me daily diarrhea and intestinal pain. I also had my stomach resectioned. Gastrojujunostomy in August.

Fulvestrant stopped working at 4 months. Reenie

Reply

I was only given ibrance and letrozole plus monthly danusomab

Reply

Letrozole gave me the worst IBS. Anastrazole was much better. It didn't work for me but it might work for you. :) Letrozole is awful.

Reply

I am on letrozole only for now. Next month will start Ibrance again lower dose. My only side effects is horrible tiredness and pain in my joint and bone. If your getting IBS with constipation take plant base magnesium 2 every day

And you will see that works!!!!!

Reply

Awesome news! Worth celebrating!! Congrats!

1 like
Reply

This is what we all want!!!

Congratulations

Barb xx

2 likes
Reply

For now I will be happy and build my strength for when I need it later on . Xx

Reply

Omg!!!!♥️♥️♥️So happy for you

Reply

This is awesome news!!! So happy for you!!

Reply

Beyond wonderful news. I can only imagine how thrilled you must be. Don't think I will ever get to say the same as I just have too much involvement but it is nice to dream. Keep doing what you are as it is clearly working. Take care.

Sandra

3 likes
Reply

So HAPPY for you! God is good.

1 like
Reply

Amazing news . Enjoy!

1 like
Reply

Fabulous x what diet please do tell

Reply

A very low Sugar diet, and I only eat between 1 and 7pm

4 likes
Reply

Great news! Will u continue on the same treatments?

Reply

Are you doing intermittent fasting?

1 like
Reply

Yes

1 like
Reply

Fantastic news for you. Congratulations. Also gives the rest of us hope. Ive just started the intermittent fasting. Im doing 16/8. Also trying to eat a good healthy balanced diet and doing less carbs and sugar/higher protein but without obsessing. X

Reply

Excellent news 💃

1 like
Reply

So happy for you!!! Such great news!!!

1 like
Reply

So happy for you!!!

Reply

This wonderful news congratulations!🎊🎉

1 like
Reply

Well done! That is wonderful news.

Sophie

1 like
Reply

Fantastic news! So encouraging to hear! All the best!

1 like
Reply

Thank you Jesus. I'm so happy for you. I wish all of us could hear those words.

1 like
Reply

Omg! That's amazing! Congratulations and continued ned for a long long time!

Reply

Praising God for your wonderful news! God bless you and heal us all in Jesus name, amen! <3

2 likes
Reply

AMEN!!

Reply

That’s great ! What type of diet are you doing ? And what supplements if you don’t mind me asking

Reply

Low GI diet

Reply

Congratulations that is great news!

Reply

Amazing! Keep doing all the good stuff!!

Reply

FAntastic!

Reply

So very happy for you! Such great news!!

Reply

So awesome! I am reading more and more about MBC patients with no evidence of disease! I'm praying we all get the same great news!.

2 likes
Reply

That is great news, I'm really happy for you, in fact this has made my day.

I too am on Letrozole and Ibrance and have been dithering as to whether or not to take turmeric and berberine. This article was the best information I could find and sits firmly on the fence!:

drjacobschor.wordpress.com/...

Clearly, neither the turmeric or the berberine have stopped Ibrance working for you so I think I will go for it too. I am also getting used to intermittent fasting and a low GI diet.

Sending good vibes and best wishes - may your NED last a very long time indeed xxx

2 likes
Reply

I only took Berberine for a short while so I don’t think it’s part of the good results but I’m continuing with it. If anything it is diet change low GI and intermittent fasting.

1 like
Reply

Where was your secondary x

Reply

Pelvic bone

Reply

Fantastic news! Thanks for sharing!

p.s. You've inspired me to increase the duration of my intermittent fast and I just ordered Claritin and low dose aspirin!

1 like
Reply

Totally awesome! I've never had clean scans. I jump for joy just to hear the words "stable disease."

2 likes
Reply

Awesome news! So happy to see the drugs are working for you! Thank you for sharing! I recently had a scan and got good results as well. I’ve been on Ibrance and Letrozole four months.

1 like
Reply

That is freaking awesome!! Enjoy and I am so happy for you!!!

Where were your mets?

1 like
Reply

Pelvic bone

Reply

Wow! Awesome news! I’m so happy for you xo

1 like
Reply

Congratulations! For the turmeric mentioned, also a form that is hydro-soluble absorbs better.

1 like
Reply

You may also like...