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Afinitor/evermestane..verses Ibrance and faslodex

Shelby4now profile image
7 Replies

I have been on the first oral combination around six months. The side effects for me have been horrible. The doctor took me off. My pet scan came back with 5 new cancer spots and no change in the original tumors. She wants me to start Ibrance and faslodex. Has anyone out there started with the afinitor and moved over to Ibrance. Im just so tired of all the side effects. Take care

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Shelby4now
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7 Replies
Marieleb profile image
Marieleb

I am afraid I am not familiar with your first treatment but I can confirm that Ibrance has done wonders for many here. It has some challenging side effects for some ( I was lucky to have very little) but you really have to try before you can work out if you will be affected by them.

Shelby4now profile image
Shelby4now in reply toMarieleb

Thank you for your response.

barbarac76 profile image
barbarac76

Hi. Yes, I went from the Afinitor/Exemestane combination to the Ibrance/Faslodex combination.

Shelby4now profile image
Shelby4now in reply tobarbarac76

We're the side effects similar?

Did Ibrance work for you. Thank you for replying . I see my oncologist tomorrow.

barbarac76 profile image
barbarac76 in reply toShelby4now

Hi. No, the side effects were different. I found the Ibrance/Faslodex combination easier to tolerate. Ibrance/Faslodex worked for two years. I had many of the common side effects - low WBC, low platelets, low Abs Neut (mine was consistently < 1.0), but my oncologist never lowered my dose because I had no infections or illnesses during the two years. I did suffer from bouts of fatigue, but not severe. Hair thinning, too.

I hope things go well with your appointment today.

Shelby4now profile image
Shelby4now

Thanks that sounds encouraging.

Jerseygirl45 profile image
Jerseygirl45

You did better than me . I could only take the side effects of Afinitor for 15 days when it put me in the hospital with lung problems. Now doing IV chemo. Side effects not bad.

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