Skin mets: Hi All, I was recently... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,668 members8,204 posts

Skin mets

Bubbles001 profile image
4 Replies

Hi All, I was recently diagnosed with skin mets. Has anyone had them and if so, do you have any treatment tips? The pathology report said they were triple negative, and I was ER+ In other locations. They only took a small sample, so I’m going to ask them for a second biopsy to confirm. I’m on ibrance/faslodex for liver/bone mets and I really don’t want to stop that. Interestingly, I read that 60% of skin mets are in breast cancer patients and 30% of MBC patients will get them as we are living longer. Lucky us.

Written by
Bubbles001 profile image
Bubbles001
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Wolverine19 profile image
Wolverine19

Hi bubbles, what a funny name I love it. So I have a scalp met that I'm assuming is a skin met because it's just on the surface but no one has ever told me officially. I have told my oncologist that once in awhile it really itches badly and if I press just the right spot it's a tiny little speck, I can get relief but I have to get that exact spot. She did not have any suggestions for treatment but she mentioned we may have to radiate. She knows I am trying to avoid that, so we have never focused on it for long. It just itches occasionally. I have thought about trying witch hazel or baking soda, both very natural products on it, but I have never done so because the itching does not last that long. I used to have two small spots of cancer at the base of my brain but those are both gone now. I have only had tamoxifen and anastrozole and I'm just now starting ibrance with faslodex. I have never had surgery, nor chemo or radiation . After only 2 weeks on faslodex, a very large met on my collarbone shrunk way down. I am er-positive, but I've never had that skin met analyzed so now I'm wondering if it could be triple negative like yours, very interesting to read your synopsis. I had never considered that I might be a different type in that spot. Definitely something to ask my oncologist. If I find out anything new, I will let you know.

Bubbles001 profile image
Bubbles001 in reply to Wolverine19

Thanks for sharing! It sounds like a skin met, but I think only a biopsy could confirm. Your experience tells me there is not a lot to be done unless the symptoms are not tolerable. I have read that they sometimes prescribe a cream called 5FU and use cryotherapy. I have a call into Moffitt to see what they want me to do, if anything. Luckily, my skin isn’t bothering me. I saw some horrible pictures online, so it can get pretty bad, but that is probably in extremely unusual cases. Sometimes, I have to remind myself that avoiding the internet is good!

Oliveoyle profile image
Oliveoyle

I have a scalp met that was recently biopsied. It was bc for sure but no one said anything about type (I am er+) faslodex/ribocyclib did not work for me. I just started xeloda (day 10 glub) so my onc says no change to treatment for now and watching met. Best to you❤️

Bubbles001 profile image
Bubbles001 in reply to Oliveoyle

Best of luck on the new treatment! I finally got an appointment with my Onc for next Thursday, so we will see what he says. At least with the skin mets, they can see visually what is going on.

You may also like...

Mets to Skin

showed up about a week and a half ago 2, is Mets to the skin. What!?!? He used the words concerning...

SKIN METS | VINORELBINE (Navelbine)

drug. And treatment or skin mets. I was diagnosed with metastatic breast cancer in Mar 2018 on...

Has anyone had their Breast Cancer metastasized to the breast skin (aka Skin Mets)?

evidence of disease, yet biopsies of my breast skin show micro metastasis in my breast skin only....

Living with Bone Mets diagnosis

Hi everyone, I'm a newly diagnosed Bone Mets patient and am finding the articles on here so helpful.

Increased liver mets on Ibrance?

else had liver mets go up on Ibrance? My original tumor and bone mets are stable but liver mets...