Skin mets

[Bubbles001]

Hi All, I was recently diagnosed with skin mets. Has anyone had them and if so, do you have any treatment tips? The pathology report said they were triple negative, and I was ER+ In other locations. They only took a small sample, so I’m going to ask them for a second biopsy to confirm. I’m on ibrance/faslodex for liver/bone mets and I really don’t want to stop that. Interestingly, I read that 60% of skin mets are in breast cancer patients and 30% of MBC patients will get them as we are living longer. Lucky us.

[Wolverine19]

Hi bubbles, what a funny name I love it. So I have a scalp met that I'm assuming is a skin met because it's just on the surface but no one has ever told me officially. I have told my oncologist that once in awhile it really itches badly and if I press just the right spot it's a tiny little speck, I can get relief but I have to get that exact spot. She did not have any suggestions for treatment but she mentioned we may have to radiate. She knows I am trying to avoid that, so we have never focused on it for long. It just itches occasionally. I have thought about trying witch hazel or baking soda, both very natural products on it, but I have never done so because the itching does not last that long. I used to have two small spots of cancer at the base of my brain but those are both gone now. I have only had tamoxifen and anastrozole and I'm just now starting ibrance with faslodex. I have never had surgery, nor chemo or radiation . After only 2 weeks on faslodex, a very large met on my collarbone shrunk way down. I am er-positive, but I've never had that skin met analyzed so now I'm wondering if it could be triple negative like yours, very interesting to read your synopsis. I had never considered that I might be a different type in that spot. Definitely something to ask my oncologist. If I find out anything new, I will let you know.

[Bubbles001 in reply to Wolverine19]

Thanks for sharing! It sounds like a skin met, but I think only a biopsy could confirm. Your experience tells me there is not a lot to be done unless the symptoms are not tolerable. I have read that they sometimes prescribe a cream called 5FU and use cryotherapy. I have a call into Moffitt to see what they want me to do, if anything. Luckily, my skin isn’t bothering me. I saw some horrible pictures online, so it can get pretty bad, but that is probably in extremely unusual cases. Sometimes, I have to remind myself that avoiding the internet is good!

[Oliveoyle]

I have a scalp met that was recently biopsied. It was bc for sure but no one said anything about type (I am er+) faslodex/ribocyclib did not work for me. I just started xeloda (day 10 glub) so my onc says no change to treatment for now and watching met. Best to you❤️

[Bubbles001 in reply to Oliveoyle]

Best of luck on the new treatment! I finally got an appointment with my Onc for next Thursday, so we will see what he says. At least with the skin mets, they can see visually what is going on.