Productive appointment today. The molecular results came back yesterday - early. It found 5 specific mutations and 2 have trials now. The one mutation qualified me for Tapur trial. The second was MATCH trial. This is new approach targeting mutation rather than cancer. I read success with larotrectinib in curing cancer. It had been given to a 7 year old w a huge tumor that was going to require her arm amputated. They treated the mutation and her tumor was gone in 7 days! That’s not the drug I’ll be taking but the approach is same. It could be one used for lung, kidney, etc. I’ll start the prequisite testing for trial — cross your fingers, pray, dance...positive vibes.
So, no more faslodex because they don’t think it will work anyway for me (did 4 shots for 1 month). No more zolodex because I don’t have to be in menopause. Just had the xgeva today. Doctor told me to keep positive.
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Snowcone16
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That's great that you have a chance for something new and promising. Crossing fingers that you get into the trial you want and that you get fantastic results!
That is awesome. You are the first I have spoken to that got this done!! I am excited to follow you with this. I was told last fall, 2017 that I should do that if my cancer spread. Did you have this done in Philly? Are you part of a study or how much did you have to pay?
This was covered by insurance. Dr indicated “it’s no problem getting insurance to cover this”. He said Medicare covered it too. After the testing, you get a report that says all trials you are qualified. There were 2 chemo trials and 81 😯 targeted trials. The trial requires it’s done to participate. I think as part of trial, they may run it again after treatment. ❤️
This is very exciting! I am so glad you had it done. Although I am not looking forward to BC spread, I will be positive about getting this done! So what is your next step? Amazed Medicare will cover!!
It sounds like this was like the DNA Foundation One testing I had done. My test she'd weak response for Ibrance which I have tried but had growth of mets on. Marched strongly with Afinitor which I am now on but holding due to very low blood counts. It appears that I will have to pay for testAment insurance won't cover it. Did your insurance cover it ?
Testing sounds like foundation one. The gene they identified FGFR1 w mutation makes the tumor resistant to hormone therapies. The irony considering it’s hormone positive! I’m glad you got afinitor to work after Ibrance fail. I wasn’t so lucky.
I had mentioned to dr “do we have to wait for insurance approval?” Dr said this was pretty standard and insurance including Medicare cover it.
Snowcone16, Great News! It sounds like you have a great team behind you. Keep following your intuition ...you have so much more knowledge now for the targeted therapy. They will find the right one just for you. 🤞🙏💃❤️❤️❤️
I hope they also find the right drug for you ! My oncologist told me this is my last drug option. After this she’s pretty much out of options. This is my 7th drug protocol after finishing 3 months IV Taxol.
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HAS ANYONE PARTICIPATED IN CLINICAL TRIALS
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