So, I’m so confused. After the scan showing Ibrance didn’t work after 4 months, my onco is putting me on exastamene and afinitor. At the appointment, they said they didn’t see a trial that I was eligible. I had mixed feelings on that like “trial? Why trial?” To “how can there not be a trial?
Now, I think that they meant there wasn’t a trial at my current cancer center. This kind of pi$$es me off because I think they should let you know all trials.
So I found another trial that is for people on exastamene and afinitor — the trial adds a 3rd drug. It’s at UPenn. They called me today and said I’m eligible.
I set up w UPenn for a second opinion. But in the midst of googling my current onc—forbes has her listed as the top 25 in US. The second opinion dr has 2 years in oncology. But UPenn has made so much news this year with the Car-T cell lung therapy success.
So, I’ll get a second opinion but don’t think I’ll change onc. And I guess I will send trial info ask my current onc about participating.
In one of my readings of radical remission—this woman participated in a trial 10 years ago for some BC vaccine. She was stage 4. She was NED after that trial. I don’t know if it was luck or a low success rate. Because obviously, we all would have done that vaccine!