Does anyone taking Kisqali - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,808 members8,425 posts

Does anyone taking Kisqali

PLASEM profile image
5 Replies

I would like to know if anybody is using Kisqali or Versenio or Affinitor because I am trying to see what I can take because it seems that Ibrance stop working I took it first with Letrozole then with Falsodex for four months my oncologist wants me to start chemotherapy I wish I can continue taking chemo pills my cancer markers are going up and I am having more pain on my hips and my scan CT shows new sites bone scan negative PET CT negative and MRI of my lumbar and pelvis inconclusive thank you

Written by
PLASEM profile image
PLASEM
To view profiles and participate in discussions please or .
Read more about...
5 Replies
hdhonda profile image
hdhonda

I am still on Ibrance but my oncologist has said that when Ibrance is no longer working that affinitor is his first choice for me to try. Having to change chemo's is difficult. Good luck. Blessings, Hannah

PLASEM profile image
PLASEM in reply tohdhonda

Thanks

Jerseygirl45 profile image
Jerseygirl45

I was where you are. Letrozole and Ibrance stopped working. Then Faslodex and afiniter stopped working. Was going to try verzenio but oncologist suggested Taxol chemo due to rising tumor markers and progression on petscan.

That's where I am now hope it works.

Barbara

PLASEM profile image
PLASEM in reply toJerseygirl45

I will pray for you, thank for answering me, I am very concerned because it started last June 2018 CT came with possible new sites then my oncologist ordered bone scan came negative then last August I had PET CT and it was negative but because I am having so much pain on my hips and lower back I had MRI and radiologist is not sure So inconclusive my tumor markers are going up little by little so my oncologist suggested chemotherapy the only treatment that I had was Ibrance with Letrozole then switched to Falsodex and Xgeva I would like to have at least CT and confirm thanks again

Jerseygirl45 profile image
Jerseygirl45 in reply toPLASEM

I don't blame you I would not do Taxol chemo if there was any chance I did not need it yet. My markers were going up 100 points a month since last January. One is up to 1100s the other 800s. I think they do about three different meds and then they go to chemo. I am very upset that I will lose my hair but do not want to wait until it goes further than my bones. I hope your stays in check. Maybe you have arthritis in hips. I have it very bad in knees and get gel injections every few months.

Wishing you well and good news.

Barbara

Not what you're looking for?

You may also like...

NED with Kisqali

After 7 rounds of Kisqali/femara my recent pet/ct scan showed no evidence of malignancy. I was...
Thrifty51 profile image

New treatment I am Stage4breast cancer ER(+)PR(+) HER(+)

I have stage breast cancer to the bones in July 2017 and I have been with Ibrance and Faslodex till...
PLASEM profile image

need advice on testing for bone cancer

NEED HELP/ADVICE as to what tests can identify a bone cancerous spot. I had a CT scan this past...
Arkait profile image

CT Scan

I need advice from you all. I need a CT Scan and I have went two times in the past & can not get...
Kelly001 profile image

Brain scan

After being told I needed an urgent brain scan at the start of April because of a pain in the side...
Julie2233 profile image

Moderation team

See all
Jslanovich profile image
JslanovichAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.