After 12 rounds of Kisqali I remain NED

[Thrifty51]

My doctor's office called with the results of my scans on Thursday. (I'm so glad they did because it would have been difficult waiting until my appointment on Jan 13). I had reached NED status in August and was on pins and needles again with this scan. My CA 27-29 tumor marker had risen two months ago by about 25 points. It has since come back down by 10 points but still not at the lowest it had been which was 53.

I was diagnosed Nov 2018 and started Kisqali Feb 2019. So far it has worked well for me.

Anyway I'll try to relax and breath easily until the next scan.

Here's to NED for us all!

Audrey

[Wintervt]

Congratulations! What great news! Wishing you continued NED status!

xo Jade

[Thrifty51 in reply to Wintervt]

Thank you, Jade.

[Justme153]

Wow!! That's great!! Celebrate!!!

[Kiera49]

That's great news, long may it continue x

[Zebra2018]

Congrats, I am so happy for you

Sima

[kduck]

Congratulations on NED

[Tam-56]

A good way to begin 2020! Congratulations to you and your loved ones. 💃

Can you share anything else with us that may be attributing your great bloodwork and successful scan results aside from Kisqali meds ie., diet, exercise, meditation?

[Thrifty51 in reply to Tam-56]

Thank you so much!

I mostly do all things in moderation. Decent diet ( I do eat red meat occasionally), and ride a stationary bike.

I do go to a breast cancer center and I am followed closely by the oncologist and an oncology pharmacist.

[Teddielottie]

Lovely news ... and I wish you continued NED until something even better comes along ! x

[LeeannW710]

Congrats! So very happy for you!

[Red71]

So happy for you! Have fun not worrying for a bit!

[Red1246]

Congratulations. NED status is so great! Enjoy your peace of mind.

All best,

Kathleen

[Juneday]

Awesome! Great news.

[Arisgram]

Congratulations!! That's wonderful!

Andi

[Rhwright12]

Awesome to hear! Live life to the fullest in the next 6 months cancer free till next scan! 🎊!

[Hidden]

Great News !

[NShaft]

Congratulations on NED! So you started your treatment with Kisquali? Why did you start there instead of something else, Ibrance for example.

[Thrifty51 in reply to NShaft]

Thank you!

My oncologist said that Kisqali was less dangerous for blood clots than Ibrance. I had had a blood clot in each leg when I was in rehab to recover from breaking both hips. That is how the MBC was discovered.

I broke one hip and had a partial hip replacement and three weeks later the other one broke and I again had a partial hip replacement. It has been quite a journey.

[mariootsi]

Celebrate! And continued NED for years to come!

[Susan1953]

Congrats on NED!!!!!

[Sunnydrinking]

Fantastic news - go celebrate 🎉 xx

[Selmac]

So happy for you.

[Julie2233]

Fantastic way to start the New Year 😊

[Hidden]

Audrey! That is truly amazing, I'm so happy for you! It sounds like this is your first-line treatment...Would you mind sharing what mets you had when diagnosed?

[Thrifty51 in reply to Hidden]

Thank you for your well wishes and this is my first line of treatment.

I had mets in the skull, ribs, sacrum, and pelvis.

[Hidden in reply to Thrifty51]

That's fantastic! Bone only and NED! My sister's been NED (with triple negative) for more than 2 years now, I think! I noticed that you exercise regularly...just like my sis. I have periods of good activity (like physical labor and/or lots of running around) and periods of laziness. But I'm sort of formulating a hypothesis that there are cases where "simply" keeping the blood and oxygen flowing to what is a pretty indolent cancer to begin with, can be effective. My sis and I are part of a study for "extreme survivors" and they asked about exercise. But they also asked an open-ended question re: "why do YOU think you are doing well?". I'd love to see those results, but they're not shared...

Best wishes for continued great health! Lynn

[hdhonda]

Fantastic news! I am so happy for you. Blessings Hannah

[Libra48]

Audrey... so happy you had a great scan! Embrace it and celebrate! Great way to start the new year.

Maria xx

[Thrifty51]

Thank you wonderful ladies for your sincere and generous comments. You make this MBC journey less fearful.

Audrey

[Kimr2081]

Awesome. I pray for that for all of us. At one point I was going on 11 years with NED but then that crap raised its ugly head again. Hoping for another NED for 11 years or more!!! Enjoy this moment.

[RLN-overcomer]

YAYYYYYYYYYYY This is a Happy, and Healthy 2020 New Year for you, and your loved ones. Also I bet this is the best belated Christmas gift ever. C-E-L-E-B-R-A-T-E.