Verzenio, FASLODEX and Zomeda for bone plus one lymph node Mets

[Bibfoo277]

Hi , I was wondering if anyone has a lymph node as well as bone Mets ? I am on Verzenio , Zomeda , and FASLODEX injections . Can anyone share how they are doing ? No one mentions that they have Mets to a lymph node plus bone Mets ?? Thanks for your time . My Ca15-3 tumor markers are 56 and I am HR+ . Love this site❤️

[Teddielottie]

Hello ! I had a right mastectomy a year ago and they found that 16 out of my 18 lymph nodes on my right side were affected so did an axillary clearance of those lymph nodes .Shortly after , after a ct and bone scan it was discovered that I had bone mets and I have been on ibrance / Letrozole since and tolerating it . My CA15-3 tumour markers haven’t changed in 12 months and remain at 18-23, and I am one of the 25% that tumour markers don’t change and are therefore not a reliable indicator for me. My onc goes on how I feel, any pain and my ct scan ( just had one in September which was good and my next is in 6 months time). I don’t think there are too many ladies on this site on Verzenio as its quite new , many are on ibrance or others. But I would like to wish you well with your new treatment and do let us know how you are getting on with Verzenio . x

[Bibfoo277 in reply to Teddielottie]

Well thanks for reply and I wish you the best as well . I really was hoping someone that had a recurrence with bone Mets and a lymph node , I should have been more specific. It seems that all the woman that posted about bone Mets never mention a lymph node too . I have a lymph as well and wanted to hear some reassurance and stable stories with lymph recurrence. Also being on new med is scary because feedback is slim as well . . So nice meeting you and sending soft hugs to you ❤️

[Lemur2015]

Hello! I am also new to this site and find it very informative. My recurrence oc mbc was about 2 months ago found in the pleural fluid resulting in a large effusion and the majority of my lymph nodes but no bone mets. I have had a thoracentisis (1500ml removed) but the effusion was back within a week. I am on Ibrance and Faslodex injections but have only been on them for two months. The majority of the lymph nodes involved are in my chest and behind my abdomen. The pleural effusion is still large (xray confirmed last week) but I don't feel as short of breath anymore and the pain in my lower back is finally gone. I am contributing this to the meds. I go for a CT scan just before Christmas. So symptom wise I feel I am doing great but we will see what the next scan shows. Never give up hope, keep a positive attitude and have a good support system. I will post my progress in the future.

[Bibfoo277 in reply to Lemur2015]

So happy you are feeling better ☺️, we are all going to stick together and support eachother . I am here any time for good or not so good days , sending soft hugs 🤗

[Purple60]

Hi my Ca-15-3 was similar and I was diagnosed with bone mets with lymph nodes in chest. After three months of similar regime, Ibrance, letrozole, and Xgeva my lymph nodes are resolved. In fact many lesions in bones have resolved and primary breast tumor reduced by nearly half. So to answer your question directly, yes I had lymph nodes and they resolved. Good luck!

[Bibfoo277 in reply to Purple60]

That all wonderful news for you . Please continue sending hugs to you 🤗

[RomieRom]

Hello! I was diagnosed with Mbc to the bones and 23 lymph nodes were removed in nov 2013. I took vercenzio for four weeks in Sept 2018. I could not tolerate the diarrhea 6-7 times per day. I was hospitalized for 3 days for dehydration. My onc started me out at 250mg then lower it to100mg twice per day. Still no relief from diarrhea. I am now taking taxol one time per week. I have ascites fluid surrounding my stomach. I have been getting the fluid drained off every two weeks. I have been on this journey for 5 years. I started taking Arimidex and zemeda. It stopped working in Sept of 2017. I was placed on Ibrance and falsodex in oct 2017. Stopped working inMay of 2018. I was put on zoloda and falsodex, stopped working. Then vercenzio. Now on taxol. My tumor marker went down while taking vercenzio but diarrhea is too much to deal with. Stay strong continue to fight. You are blessed!

[Bibfoo277 in reply to RomieRom]

Thanks for reply . I’m sorry for your diarrhea but what I do is the brat diet and it works great . No diarrhea, if I know I will be eating off the brat diet then I start taking the diarrhea pills the onc gave me and I’m fine . I’m so sorry for your hard time on this med . Hugs to you and please keep me informed that you are feeling better . ❤️

[RomieRom]

Thanks for your reply. I will look up the brats diet. Have you taken taxol or any other IV chemo drugs?

[Bibfoo277 in reply to RomieRom]

Yes 3 years ago , TC 6 infusions , 5 hours each . 😩

[Bibfoo277]

Yw , how are you doing and what meds are you on ? Xx

[Bibfoo277]

That’s awesome , so happy for you ☺️❤️

[Bibfoo277]

At first may 2015. Recurrence just 2 weeks ago 😩

[LisaT23]

Hi,

My original BC was May 2003 with only 3 lymph nodes involved. I did right mast chemo roads and arimidex with Lupton for 5 years. Then nothing until November 2015 when my tumor markers went up. PET scan showed medisteinal lymph nodes and a spot on my sacrum lite up. Biopsy of lymph nodes showed metastatic breast cancer. Went back on arimidex and markers went back down. Added xgeva and kept trying to add ibrance but couldn't handle it while working. Then December 2017 my markers started rising again. New Pet showed the spot on sacrum was now 10.something up from 3.something and lymph nodes active. Switched to faslodex with xgeva in January 2018. Added ibrance in April and had to stop working. Fatigue, low red blood cells, major stomach upset,and diarrhea, bone pain & aches and lightheaded. I seem to catch every cold possible. But I try to deal with it, afraid of the alternative. My last PET was in August the lymph nodes resolved (didn't lite up at all) and the spot on my sacrum is now down to 6.something. They called it a partial response. Markers are still fluctuating in the 60s so will do another scan in December or January. As long as it doesn't spread I will try to be happy.

Lisa

[Bibfoo277 in reply to LisaT23]

Yes down is the right way for number to go ☺️Hugs

[laurac1014]

I too have nodules in both lungs and lymph nodes in lungs and in bone mainly ribs and sacrum. Thought I had over worked my tailbone a year ago. I just started Ibrance and letrizole and had first pet scan. Odd to go through these scans since I am a CT technologist.

Someone has recommended Mushroom Defense supplement which I plan to give a try. Perhaps the CBD oil if needed. I had a migraine that would not quit yesterday.

Looking forward to hearing good news from others on this (sinking ? ) ship.