Can someone answer this question

[kduck]

I was dx in 2017 bone mets only, last scan showed bc in my axillary lymph node. Does that mean im still bone mets only? I've changed treatment and Im going to do radiation on my lymph node and my doc told my radiation doc he wanted my left breast radiated as well. He believe it caused the lymph node problem. Thank you

[kduck]

Thank you for your response

[Rhwright12]

I was diagnosed Metastatic de novo 3 years ago...with mets to bones...had 3 lymph nodes test positive...but I’m considered Bone only...I believe we all have/had some lymph node involvement 😀

[kduck in reply to Rhwright12]

Thank you. I hope you are still doing well and hope you continue to do well.

[Andersl in reply to Rhwright12]

I have no lymph node involvement. Mine travelled through the blood stream.

[Livinthedream]

No you are not mets to bone only. Lymph nodes are soft tissue. I have a lymph node with cancer in it between my liver and pancreas my doctor said its spread beyond my bones, so it is not only boney mets.

[PJBinMI]

I have bone mets only (for 15 plus years) and a few years ago a couple of nodes became involved. Since nodes act as filters for the lymph system, I just told myself that those nodes were doing their job and keeping the cancer cells from going to places that would be a much bigger problem. I had one node removed so it could be tested to see if the cancer had changed at all. It was still E + and her2neu - but the P switched from + to -, which in the big picture is really no big deal. After some long periods of stability, I have been able to relax alot about having mbc and figure that I would rather stay on any given drug a tad too long than not quite long enough. I want to live as long as I can with a fairly decent QOL (quality of life). I'm not as energetic as I was before cancer but I am also 73 and not 57! (diagnosed month of my 58th birthday) I'd rather blame cancer than age for any changes! lol One thing I do suggest to everybody with mbc is to get a second opinion from a bc specialist onc, preferably at one of the Comprehensive Cancer Centers, if in the US. List of those CCCs is in the "useful resources" link to the right of our posts, under Topics heading. Those are the top tier of cancer centers in the US and almost all of them, if not all, have oncs who see bc patients and do research. My own local onc suggested I do that right after initial staging that found the bone mets. She just retired at the end of last year and I went back a few weeks ago for another second opinion. Both times the specialist oncs have been extremely encouraging and I have left both appts really feeling buoyed up!

[Susan1953 in reply to PJBinMI]

I love reading your posts. They inspire me. I am so glad you are doing well.

[PJBinMI in reply to Susan1953]

Thanks, Susan! I write partly because I know that if I had heard from a 15 year survivor during the first months of this crazy mbc experience, I might have been a bit more optimistic!

[kduck in reply to PJBinMI]

Thank you so much for your response. After biopsy, my onc did tell me it stayed the same er+, I was glad for that. He suggested I get my breast radiated just because started from my breast. I love your post and you are so very encouraging. When I feel down I always reread your post. Im 42 with young children and Im trying to work as long as I can to support them and be here for them. They are my reason to keep living.

[PLASEM]

I was diagnosed stage 2 B first with lymph nodes involved that was on 2014 it was find out during my mastectomy and they checked my lymph nodes so they removed 20 lymph nodes, then on 2017 cancer came back with bone metastasis

I do not know if you had mastectomy with lymph nodes removed first when you were diagnosed bone metastasis or you had no surgery and your lymph nodes were checked recently God bless you

[kduck in reply to PLASEM]

Lymph nodes checked recently, I was bone mets from first dx. I did hv radiation in 2017 to bone mets, all mets have been under control. God bless you

[Presence1]

Hi

I have boneMets only diagnosed January 2019 but in pain all of 2018 (no one could figure out why). Never found tumor but it is estrogen based ER + P +, on Ibrance Xgeva Femara .

Lately I’ve been feeling pain from where initial pain started. Last PET in April showed substantial decrease in bone Mets. New PET in a week or so. Could things have reversed? Or could this be a “healing “ pain?

Did you ever experience anything like this?

[kduck]

I did, I had mostly all bone mets radiated. It helped so much. Im only taking femara at the momen