I am on chemo vacation! 23 mo. On Ibrance/Letrozole combo for Stage IV mbc to lymph nodes, lungs. I still take 2.5 mg of letrozole daily My counts are normal but I had a severe Rash & frequent heavy fatigue episodes. My dosage was 75mg. How long could I be off before restarting Ibrance? I'm hoping to stay off for 2 to 3 months to feel good for awhile. Anyone else take a break from Ibrance for a month or more than resume to their daily dosage?
23 months on Ibrance now am taking 1 ... - SHARE Metastatic ...
I'm in remission for 3 mo.now
My wbc counts were 1.4 and my platlets normal range. He gave me a break due to hives/ rash on chest and stomach for 3 mo. & extreme fatigue. Now on light ant-depressant
And itchy rash is gone. I felt better after 10 days off Ibrance, less bloated too. Still on letrozole. Labs on 9/12 & will see what's next for now I'm happy!!!
First, I was on Letrozole & Ibramce, started Jan 2016 to treat Stage 4 MBC. Immediately, I was in remission; hair loss significantly but blood work perfect. 10 months later, severe pain bones, joints & muscles. Long story short, Letrozole to blame!!! Then, I was approved for Faslodex to replace the Letrozole. I’ve been in this chemo regimen 3 full years now. Tired, yes, weight gain, yes 25 lbs, flakey skin, yes - a lot!, hair loss, yes - very thin!, bone pain, yes - pain pills, anxiety, yes - lots!!! BUT, I’m alive, thank GOD. I’m a widow with no home support or financial help. No one has EVER suggested I take a break from the Ibrance or Faslodex; in fact my Oncologist said I’d be on this schedule FOREVER! All my PET scans are clear since March 2016. My platelets were high once so I’m taking Fish Oil and Flaxseed and this brought the platelets back to normal range. All other blood tests and CTs are fine. My MBC was extremely aggressive and I’m convinced if I stop the medication, remission would promptly end. Previously, when the Letrozole was discontinued, they said I was safe for 3 weeks. May I add, I feel bad, lifeless almost, depressed, nervous, but not hopeless! This is a life changer for sure! No one in my family has/had breast cancer. I am post menopausal, hysterectomy at age 62. I’m 66 now. Sooo bewildered WHY I have HR+ but they say estrogen is produced still after hysterectomies. Mine was stored in my right breast and spread to lymph nodes and left lung. Needless to say, I was in BIG trouble! That was 3 years ago... fingers crossed and prayers said, a cure is found. I’d SOOO LOVE to enjoy my life without the torment of endless worry. Only YOU can understand. PS- I see Ibrance tv commercials daily, sometimes hourly and don’t you know these actors look nothing like me!!! It’s not that easy, is it?!!! Maybe the Drs will find a cure, who knows... blessings to all here, you are not alone.
Yes, I had 5 weeks off ibrance 100 mg over the recent holidays. Low wbc had me on “house arrest”with a restricted diet for neutropenia and I became quite depressed. I also wanted to be able to have a brief holiday and celebrate my husband’s birthday while away without food restrictions and considerable fatigue.
My recent scan had shown no further metastasis so the onco nurse arranged for this schedule change.
I began a new ibrance cycle 1/17 and will have blood work done 2/13 to see what the count is. I’ve felt less than the usual amount of fatigue but Letrozole also causes that and I continued taking this so I wasn’t completely energized.
Good luck to you - how nice to be off Ibrance that long! Sending all best wishes for your break. Red