I’m getting a little worried that I won’t be able to take targeted therapy. I was pulled off 2 so far and I think there’s one left. However the only one left is just as bad on your wbc and Neutrophils. So what next? I don’t have any idea, I guess maybe one of the older hormonal therapy’s. Does anyone have any suggestions that would help me feel better about this whole thing. I know your not Drs but most everyone seems to know as much. Thanks 🙏
Getting nervous 😟 : I’m getting a... - SHARE Metastatic ...
I’m sort of in the same situation..at the moment back on Ibrance 100 mg as couldn’t have the higher dose because of wbc..however the letrazole seems to be working..been on it 3 months and tumour markers gone down from over 1000 to 280..so don’t give up on the older drugs..my oncologist says she’ll try me with tamoxifen if no luck with the Ibrance or if letrazole stops working
Love b x
I was told by my first onc that if I couldn't take Ibrance that maybe something new would be available. I went to MDA and when I told my now onc she about fell out of her chair. I was told there are already several others available, so don't give up. Ibrance did not work for me, it wasn't so much as lowering me counts, just didn't work. I could tell after the first 3 months because my hair was coming back really thick.
Ask your oncologist about adding the herb, astragalus, to your arsenal; mine okayed it. It is said to help boost the immune system by increasing WBC's. Here's one of many articles: rjwhelan.co.nz/herbs%20A-Z/... I get my supply from Amazon: amazon.com/gp/product/B0002...
Is your major side effect low WBC's, and is that why they are pulling you off certain treatments? If that's the case, I'd really investigate adding this herb; maybe even get an appointment with an herbalist and report back to the onc. Good luck, Clair; you are in my prayers! XO Linda
Thanks Linda, I go today so just nervous on what he wants to do. If it was just in bones I wouldn’t worry as much. When it’s in your lungs you do freak a little more. I will just pray something can be used before my lung gets worse. Hopefully the Faslodex will hold it at bay for a bit. Thanks again Linda, always trust your advice and makes me feel better. I will ask him today when I see him.💗
I hate coming to the oncologist, it can’t just be me. I guess it reminds me I have this horrible disease. I imagine it’s normal but I don’t mind my other Dr.. I love my oncologist, he is the number one Oncologist in the South, people come all over to see him. I mean it’s not NY or a big clinic but I get excellent care. I’m just a big baby ever since my diagnosis.
It is so normal to get nervous, you have lots of company. I had a pet scan done today, I'll know what the results will be in a few days. My thought is, never, never give up, always look for potential options and hope for the best. Thoughts and prayers are with anyone here who is struggling with this.
How true! No giving up here just hoping for good test results. A little encouragement goes a long way with anyone. I know some people here more than others, but all are in the same boat. We need to all be thankful for improvements in modern medicine for us. Just think what will the next couple years bring. 🙏
I was reading that you can not take Ibrance because your WBC is low, mine is too, but after my three weeks my is very low 0.5 and feel good my oncologist orders Neupogen two shots then goes up and after one week I start again with Ibrance, I am switching from Letrozole to Faslodex, I am having too much pain on my hips