New to the group

[Solochabe1]

Recently diagnosed with stage IV bone Mets, on Xeloda Pills what to expect?

[Mariannem]

Xeloda was my first treatment it was quite effective in controlling my cancer for 18 months. I did develop hand/foot syndrome. Hand/foot syndrome is due to the medication leaking out of capillaries and then causing irritation to your skin on your hands and feet. The skin becomes red, irritated with a burning sensation then the skin starts to peel. If this starts to happen report it right away as your dose should be reduced. It does take a while to find the right dose for you. I used Bag Balm on my hands/feet to help with this. I also wore gloves and shoes that did not create a lot of friction on my feet. I found icing my feet and hands several times a day to help with the burning sensation.

[daf10]

Welcome to the group Let me know if you need to speak to someone else who has been on Xeloda

[Solochabe1 in reply to daf10]

Thanks 😋

[LonPoPo]

It seems that the side effects from Xeloda vary a lot from person to person, by the length of time one is on it and also the dose. I"ve been on Xeloda for 9 months and didn't experience any foot/hand problems until recently, when my fingertips became very dry and started to peel. Some have hand/foot syndrome from the get go. In the beginning, I was a little nauseous but that disappeared pretty quickly. My biggest side effect, which has gotten much worse lately, is fatigue.

I have been on three pills (1500mg), morning and evening for the entire time.

I think you'll just have to see how Xeloda affects you, knowing that it can change over time, both for the better and for the worse. But no hair loss! Also, some doctors will quickly manage the dose if side effects become bad.

Let me know how you do. Good luck!

[Ibelong]

I had hand foot too from the start. Ice is the best. No long hot showers or washing dishes without gloves. Always wear socks, slippers or shoes.

[suzesunshine]

I have stage 4 bone mets too. I'm on Ibrance and Letrozole, and I'm doing very well. Ask your doc about those.

[Sheila100856 in reply to suzesunshine]

suzesunshine do you mind?May I ask how long you have been on the current meds.I too have the same diagonosis I have'nt started the Imbrance I am taking the Letrozole but My oncologist did mention that we may have to add it at some point.Thanks XXX

[suzesunshine in reply to Sheila100856]

Hi. I started on Ibrance, Letrozole and Xgeva in March 2015. Doing really well, so far. Hope you are having success too.

[Sheila100856]

Wonderful......your blessed and I am too..Great to he that your doing so well...

..

[Jan_Schnabel1]

Diagnosed in October with bone METS, on Anastrazole which has been working fine, but my second opinion suggested switching to the Ibrance/Letrozole combination just because of the success they have been seeing with it so I will be making that change later this month. Best of luck to you and to all of us as we continue our battles.