How many years on ibrance for NON NED patients?

[Kahe]

Hi , I am happy to be back on this group (having been sidelined by a car crash) .

I have a query if you all could pls help? I see posts from people who, happily, get many years on their first line treatment of ibrance. I note however that many of this population are NED.

I am curious here about the non- NED population and wondering how long you all have been able to stay on ibrance? I am in my 3rd year of ibrance treatment (full dose). My cancer markers are within normal range but not NED. Many thanks for taking time to read this 🙏

[2Hopeful]

I just completed my 4th year on Ibrance and still stable. I have a very small tumor in brachial plexus area that appeared almost 10 years ago after my initial breast cancer diagnosis in 2001. So I’m not NED and don’t think I ever will be but still doing very good all things considered. I go to M D Anderson in Houston and just had checkup.

[Kahe in reply to 2Hopeful]

Hi 2Hopeful, thanks for your reply. I hope this line of treatment continues for a really long time for you, best K

[awesome4ever]

Hi Kahe. I was diagnosed in May 2018 De Novo MBC with very extensive bone mets. I will never be NED....stable is my criteria. I had 5 successful years on Ibrance/Femara before I had to change to my 2nd treatment line. It was a wonderful treatment. Personally my oncologist says that unless a person has just minimal disease of bone mets that she doesn't believe in the term NED because the bone lesions remains there they are just sclerosed(hardened) and thus here classified as stable. I think it is dependent on where you live as to the use of NED in general. Regardless stable is the best words that I can hear with living with MBC. I have been on my 2nd line of treatment for 16 months now and going strong.

I hope you recover quickly from the car crash and get many more years on your 1st line. Don't fret the NED posts...some can be misleading in my opinion. Take care.

[Kahe in reply to awesome4ever]

Dear Awesome4ever, thank you for taking the time to answer. So pleased to hear you continue to do well and really hope that you will be awesome forever. Take care K x