5 years still here: It’s been 5 years... - SHARE Breast Canc...

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5 years still here

Collswims profile image
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It’s been 5 years since I was diagnosed stage IV her2+ breast cancer. I still get infusions every 21 days of herceptin and perjeta but they are keeping me here in this life. My scan earlier this month was clear and my echocardiogram was normal. Had my last medical appointment for 2018 last week, woohoo! But, as all cancer patients know those dr appointments will never end, so come January it all begins again. But....I am still here.

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Collswims
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Nicu697 profile image
Nicu697

Wish only the best for you in the new year

Ytabnm profile image
Ytabnm

Congratulations! You keep fighting.

Rhwright12 profile image
Rhwright12

Hi! I’m 2 1/2 years in with bone mets...also on Herceptin/Perjetta...my blood work just recently came back NED...I noticed u said your scans were clear...will u continue with the Perjetta even when NED? My ONC doesn’t want to commit to an answer...any thoughts? 😀

Collswims profile image
Collswims in reply to Rhwright12

My oncologist does not want to stop treatment. I have mixed emotions about all of this; roll the dice and stop treatment? Being a stage IV cancer patient is difficult and expensive and overwhelming and complicated. In some ways there is a small part of me that wishes I didn’t make it to five years. These past five years have been wrought with challenges from my stage IV cancer dx. The financial aspect and maintaining solid health insurance coverage is extremely psychologically stressful.

Rhwright12 profile image
Rhwright12

I pray for your insurance situation to get better. My husband carries my insurance which right now is reliable. Hope that never changes! Right now I’m still in good health...going to Yoga and Body Punp class in an hour...

I’m Er* so I’m also on Zoladex Arimidex and Xgeva for bone mets...so getting off Perjetta and keeping Herceptin would just be getting off 1 of 5 meds...😂😂😂 I guess I didn’t explain that I’m well medicated!

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