Xeloda, biopsy, piqray insanity

[Francesca10]

Hi everyone saw doc yesterday came home with headache. Have to get approval for xeloda treatment. The liquid biopsy needs approval thousands of $ for the test. Then if I have mutation need approval for that treatment. I am going to have to work as school nurse again to keep commercial insurance coverage. And work private care p/t. I will be 66 in January and cannot retire- Medicare does not cover these drugs. This is just a hope to stay alive as long as possible and beat the cancer down. I also have to look into supplemental insurAnces but need to know what drug I will be on to see if it will be covered. This is a lot to handle right now. On the plus side, my body needs rest, still healing with sciatica/physical therapy and still on steroids from ibrance allergic reaction escalating.

Thank you all for being here. ♥️♥️To all of you

Frances

[Betbop]

I'm so very sorry that your dealing with all of those challenges seems like way too much for one person.. Sending you prayers.

[Francesca10]

Thank you Sandra. It’s been too much really lately. I find I am very on edge. I am not even thinking about the cancer- just will I be ok in another drug? The last reaction was step away from anaphylaxis- too scarey. ♥️♥️

[anrean]

Francesca, sometimes there is help out there that we have to dig deep for. One resource I found very helpful was the local office for legal help for the elderly; surprisingly, they knew of financial resources that can help a great deal. If you are being treated in a hospital or large medical group, the financial office may know of resources or can point you in a direction. If there is a somewhat nearby Comprehensive Cancer Institute their financial folks also may help. If you don't own your home, check into the services offered in nearby counties - my county offers far more than the one 2 miles down the road and it may be worth the move. The Medicaid office in my county also knew of resources, and I swear it was the person who chose to help when others just sent me away - an appointment with the supervisor was critical in getting the information. If there is a large religious group such as Catholic Charities, they often have information and help. Networking is another resource - when Gilda's Club was here we shared a lot of information that others did not know about. I also have a couple friends with very expensive diseases who have helped with pointers. It is very daunting and frustrating, and I could only do it in small chunks, but eventually things began to come together. I now live well below the poverty line and my style of living went down the tubes, but am still alive after 5 primary cancers and dozens of out of plan prior authorizations. I hope some of this helps you. You are in my prayers, and please keep us updated.

[Francesca10]

Thank you♥️

[Lavendar19]

Did you see a nutritionist to devise your supplemental plan?