I am looking for volunteers who would be willing to feature on the RLS-UK website as case studies, the intention being that you can tell 'your story', how long you have had RLS, when and how you were diagnosed, how it has affected your work, family life, life in general. If you are interested in participating, please message me or send an email to chair@rls-uk.org. Ideally I would prefer UK participants as the site caters primarily to a UK audience. You would not have to use your real name if preferred though I would like to indicate your age and location (e.g. London, Birmingham, Sevenoaks). I would also like to include a photo if possible but this again would be optional.
Thank you
Daragh, Chair RLS-UK
Written by
Daragh
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Please can those of you who are interested email me (chair@rls-uk.org) with the following details:
1) your forename and whether you are happy for it to be used
2) your location
3) your age
4) your story. Think about how long you've had RLS, if anyone in your family has/had it, how you recognised it, how and when you were diagnosed, how long it was before you we're diagnosed, the impact RLS has had on your life, your health, your work, your family... I would prefer that we didn't mention specific medications which you may be on but tips etc gratefully received. Include anything which you think may help someone else looking for help. Please don't have a go at doctors etc. I want it to be as constructive as possible. No more than 200 words please!!
5) please attach a photo if you are happy for it to be used.
6) anything else which you think relevant.
I am looking for about ten people....to avoid letting anyone down (as much as possible) I will accept the first seven/eight women and two/three men who reply to all of the points above.
Any questions etc, please feel free to contact me.
Seven case studies received from women (as well as one expression of interest) and one expression of interest from a man. At the moment I am only looking for one more female and one more male case study.
As above, please can those of you who are interested email me (chair@rls-uk.org) with the following details:
1) your forename and whether you are happy for it to be used
2) your location
3) your age
4) your story. Think about how long you've had RLS, if anyone in your family has/had it, how you recognised it, how and when you were diagnosed, how long it was before you we're diagnosed, the impact RLS has had on your life, your health, your work, your family... I would prefer that we didn't mention specific medications which you may be on but tips etc gratefully received. Include anything which you think may help someone else looking for help. Please don't have a go at doctors etc. I want it to be as constructive as possible. No more than 200 words please!!
5) please attach a photo if you are happy for it to be used.
6) anything else which you think relevant.
Any questions etc, please feel free to contact me.
I might be interested in helping but I am primarily a Parlinson's Disease sufferer who has a bit of RLS especially if I haven't been taking the tablets (Pramipexole). So I don't expect my case is appropriate -- you decide?
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An RLS webinar in case you are interested
Is there a specialist in the uk for RLS?
