Would you be willing to feature as a case study on RLS-UK?

I am looking for volunteers who would be willing to feature on the RLS-UK website as case studies, the intention being that you can tell 'your story', how long you have had RLS, when and how you were diagnosed, how it has affected your work, family life, life in general. If you are interested in participating, please message me or send an email to chair@rls-uk.org. Ideally I would prefer UK participants as the site caters primarily to a UK audience. You would not have to use your real name if preferred though I would like to indicate your age and location (e.g. London, Birmingham, Sevenoaks). I would also like to include a photo if possible but this again would be optional.

Thank you

Daragh, Chair RLS-UK

17 Replies

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  • Great idea! I am sure lots of UKer's will want to tell their stories. :)

  • Yes pleaseeeeeeee. :) :)

  • me too :)

  • Please can those of you who are interested email me (chair@rls-uk.org) with the following details:

    1) your forename and whether you are happy for it to be used

    2) your location

    3) your age

    4) your story. Think about how long you've had RLS, if anyone in your family has/had it, how you recognised it, how and when you were diagnosed, how long it was before you we're diagnosed, the impact RLS has had on your life, your health, your work, your family... I would prefer that we didn't mention specific medications which you may be on but tips etc gratefully received. Include anything which you think may help someone else looking for help. Please don't have a go at doctors etc. I want it to be as constructive as possible. No more than 200 words please!!

    5) please attach a photo if you are happy for it to be used.

    6) anything else which you think relevant.

    I am looking for about ten people....to avoid letting anyone down (as much as possible) I will accept the first seven/eight women and two/three men who reply to all of the points above.

    Any questions etc, please feel free to contact me.

    Thanks again

    Daragh

  • I will send you my story and I don't mind you using my real name and things :-)

  • Four case studies received from women and one from a man so far this evening.

    Thanks to all.

  • Seven case studies received from women (as well as one expression of interest) and one expression of interest from a man. At the moment I am only looking for one more female and one more male case study.

    Thanks again.

  • my email is ajones473@yahoo.com, & I`d like to take part in a study.

  • As above, please can those of you who are interested email me (chair@rls-uk.org) with the following details:

    1) your forename and whether you are happy for it to be used

    2) your location

    3) your age

    4) your story. Think about how long you've had RLS, if anyone in your family has/had it, how you recognised it, how and when you were diagnosed, how long it was before you we're diagnosed, the impact RLS has had on your life, your health, your work, your family... I would prefer that we didn't mention specific medications which you may be on but tips etc gratefully received. Include anything which you think may help someone else looking for help. Please don't have a go at doctors etc. I want it to be as constructive as possible. No more than 200 words please!!

    5) please attach a photo if you are happy for it to be used.

    6) anything else which you think relevant.

    Any questions etc, please feel free to contact me.

    Thanks again

    Daragh

  • I would like to volunteer for the study

  • Please note that all of the places for female case studies have now been taken. Thank you to those of you who have volunteered.

  • would love 2 take part,,most gps dont understand or recognise this condition or how soul destroying it is

  • sent you an email x

  • I might be interested in helping but I am primarily a Parlinson's Disease sufferer who has a bit of RLS especially if I haven't been taking the tablets (Pramipexole). So I don't expect my case is appropriate -- you decide?

  • Would love to take part if there is still room. Will email you and wait for your decision

    Thank you

  • yes i would like to as this is a really disturbing condition that affects your social life

  • Yes I would Darah.