RLS-UK FILM on Living With RLS

[Joolsg]

A great film commissioned by RLS-UK for International RLS Day. Please share widely to any other groups you belong to on FB, Twitter(X), Instagram, Reddit and You Tube

rls-uk.org/post/living-with...

[Typicallygaslit]

Um…. there are no captions?? I really wish disability charities would be more inclusive!

[Kakally]

Heartbreaking as always…. and all of us can empathise with these dear people with RLS

[Joolsg in reply to Kakally]

Yes and share their rage at the lack of knowledge and help from GPs and neurologists.

[Kakally]

definitely 😡

[HipHop1972]

Well done all of you. Just watched the film and it explains so very well the effects of RLS on sufferers lives and the issues of Dopamine Agonists. Was just a little surprised that nothing was mentioned about the medication that’s been trialed by sufferers and found to be of great benefit. Anyway it’s wonderful and will it be put out on TV

HipHop1972

[Joolsg in reply to HipHop1972]

Unless a TV company or channel decides to show it, then it won't be on TV.Another film about Buprenorphine anx how successful it has been for so many patients that augmented is a good idea.

Might look into that!

[HipHop1972 in reply to Joolsg]

Hi Joolsg, that would be fantastic anything to kill the myth that doctors repeatedly state that there is no evidence to prove that it works. They have to have the courage to prescribe buprenorphine rather than leaving it to those Consultants who know about and take the trouble to research RLS.

HipHop1972

[Joolsg in reply to HipHop1972]

Absolutely agree.

[Jumpey]

Cheers.

[Rameau]

I have seen it posted on both X and Bluesky.

[Rameau]

See also:

Press Release: Restless Legs Syndrome (RLS) is a major burden on healthcare budgets in Europe.

braincouncil.eu/press-relea...