Neurologist appointment tomorrow

[Jose651]

Hi Friends,

I am seeing a Neurologist (private app) tomorrow. I have been on Pramipexole 0.088 mg x2 for years. I am augmenting on this dose for several months now and won’t increase as I am so afraid and nervous about withdrawing from the 2 I’m on. I take Magnesium daily.

I have spoken with this Neuro by phone and know that he is willing to help me withdraw from Pramipexole. He mentioned Gabapentin and Preg which I had tried and couldn’t take because of side effects. He then mentioned OxyContin.

Are there any members taking OxyContin to help with this scary process of withdrawal from a DA. If so, how was the experience for you and how long did it take?

I really wish that I never started on the DA’s.

[Madlegs1]

Hi ! If he is offering Oxycontin, I'd grab it with both hands. It's a 12 hour pill but for some people it only lasts for 8 or 9.( That's me 😥).

You could start coming off the Prami by 0.088 for a week, and start the oxy 5mg at that point , and then go off the final Prami after another week.

He will probably offer you just oxy 5 for the night time, and that may well work for you.

But in my case I got mini withdrawal the next day, and needed cover for the full 24 hrs.

Then the 5mg wasn't doing the job so I had to go up to the 10mg. Twice in 24 hrs.

Again, that didn't cover me, so I was allowed to take an Oxynorm 5mg to makeup the difference.

So now I'm on Oxycontin 10mg twice a day ,and Oxynorm 5mg once. That is 25mg of opioid per day, which is perfectly ok for long term use according to Dr Mark Buchfurer.

I'm glad you've got someone who is open to opioid use. Your task is to prove to him that you are" opiate responsible "

And to get him to ok the scenario above for your GP to allow fiddling around with the doses.

I was on mirapex many years ago and came of itok, without even realising it could be a big deal--- before I discovered this site 😝😎☠️🙄

I won't pm you at this time of night-- I started to, but came back here to get your full post.

I hope you get on ok. Let us know how things go. 💚

[Jose651 in reply to Madlegs1]

Bless you Madlegs1 for such a clear direct reply. I will let you know how I get on tomorrow. 💚☘️

[Jose651 in reply to Madlegs1]

Hi Madlegs, I had a very positive consultation with the Neurologist yesterday. He is prescribing OxyContin and Targinact which contains naloxone. He emailed those details to me and will write to my GP with instructions.

I feel so grateful to you and the members of this powerful group.

💚

[Madlegs1 in reply to Jose651]

Great news. You must be a powerful negotiator!👍

Did you have anything to do with the Good Friday Agreement? 🤔

[Jose651 in reply to Madlegs1]

😂🤣. You are a powerful member of this forum 👍I wish.

💚

[LotteM in reply to Jose651]

Just a question. Is he prescribing Oxycontin AND Targinact? I assume it is a typo. And it is only about Targinact, which is a combination of Oxycontin and (some) nalaxone. Both Targinact and Oxycontin would be more or less twice the same thing.

[Jose651 in reply to LotteM]

You’re perfectly correct LotteM, thank you. He is prescribing Targinact.

[LotteM in reply to Jose651]

That makes sense 😃

[Paganpatrick]

I found Gabapentin and Duluxotine to be of no help and nasty side effects. Coming of opiates was a walk in the park compared to these two. I now take Amitripline for nerve endings pain, 35 mcg Buprenorphine patch for fibro pain plus’s spinal pain from a parachute accident. It also has the unexpected benefit of calming my RLS! I would as mad legs says grab the oxy with both hands! So many have abused it which has made it difficult for those of us legitimately needing it. After a couple of months check that it’s doing what it should, you can always change dose or add another med to cover certain areas. I think this is a positive step forward. I’m a big fan of Buprenorphine patches, I’m on a high dose of 35mcgs for other issues too. But you can get 2mcg and 5mcg doses tailored to RLS. I don’t know why it is not used more widely, cost?

[SueJohnson in reply to Paganpatrick]

Please mention that coming off gabapentin needs to be done slowly, as there are no withdrawal effects if you do so. Otherwise you will scare off people who might not have the side effects you did from even trying it.

[Jose651 in reply to Paganpatrick]

Thank you for your reply Paganpatrick. I had a very productive consultation with the Neurologist. I am grateful to every member that replied to my post and previous posts regarding augmentation.

[denno]

Nice doctor. Getting you off one addiction by adding another! Oxy is the devil's pill and will get you addicted within a few months. Watch 'Dopesick' series.