This coming Friday I'm seeing my neurologist. I last saw her two years ago when Pramipexole was working, which it now isn't, alas.
This is what I'm planning to ask for: procedures towards possible iron infusion; a higher monthly tramadol prescription – my GP has prescribed 6 a month – which is the only standard med that really works; cannabis, if not now, then in the future when the DoH has it's act together (UK).
I wondered if people had comments about this, or felt I'd left anything out. Any help gratefully received.
I've had RLS for forty years. It's the painful type, like the torture where electric shocks are delivered to the prisoner when she falls asleep. I also get muscle contractions, needle-like stabs of pain, and a bristling sensation like hot glass fragments under the skin. Attacks at night are frequent. I use cannabis and kratom a lot, and owe what shuteye I get to these two brave herbs. I owe nothing to the shysters who blanket-ban them, but what do they care.
I take it dipyridamole is a no-no for now due to side-effect dangers.
And the drug for urinary incontinence that was mentioned here recently as effective in some cases I take to be too vexed to suggest.
My neurologist is a lovely person with heaps of enthusiasm. She isn't an expert, however. Will I still love her after Friday? Hope so.