Video of RLS/PLMD

[Joolsg]

Just came across this on Instagram. How many thousands of people have this and are totally unaware they're getting terrible quality sleep?

Fascinating.

instagram.com/reel/DAHhPEeS...

[Huntingleroy]

Poor thing , she must be exhausted

[Joolsg in reply to Huntingleroy]

And her poor partner. I just hope she gets help & finds a doctor who won't ruin her life by prescribing a DA!

[HipHop1972]

Hello Joolsg thanks for posting that little tit bit. As you say fascinating, yes, but equally horrifying. We have all been there and I know the video has been speeded up but it brings the reality of RLS to life and anyone who sees it would want to help the sufferer. The medical profession should be made sit down in front of screen and watch the nightmare 😱

Kind regards HipHop1972

[Joolsg in reply to HipHop1972]

Absolutely. They have no idea of the nightly torture.

[Kakally]

yep… that’s exactly like me for about 5 years up until 2020 ……. It was like that virtually every night and sometimes continued into the daytime

Thankfully I’m sooooo much better now since my iron infusions as necessary and my buprenorphine patches (changed twice weekly).

Only very occasionally do I have a spell like that these days , and I just get up and stamp around the house until it settles . People really need to see this video ……😔😔😔😔😔

[Rayme]

It makes me so sad to watch her battle, it is a torturous condition. I take methadone and last few nights had more persistant breakthroughs. So exhausting to deal with as we get older because you just don't want to or have the energy to get up...again, so the RL will continue if you don't get up for a bit. Phew!!!

[Joolsg in reply to Rayme]

I suspect she doesn't even know what she has! And how many others are there in the same position?Hopefully someone will pass on the comments and she'll get her blood tests, start iron & if that doesn't work, start pregabalin/gabapentin or opioids.

And hopefully your RLS will settle or respond to a slight upwards dose adjustment.