Went to see Prof Murphy at Manchester on Wednesday.
Just wanted to say what an amazing consultant he is, he was a breath of fresh air.
He listened to me, understood me and didn’t hesitate to prescribe Buprenorphine.
He is in disbelief at our GPs and their lack of knowledge and poor prescribing!
Worth every penny (and compared to some neurologists, not expensive).
He also suggested trying medical cannabis and recommended the CuraLeaf Clinic.
Fantastic to hear.
Sounds like everyone needs a Professor Murphy in their corner. Get him on the lecture circuit ASAP.
Wow sounds amazing - please can you share his details / clinic? And if he prescribes, does it still need to go through your GP (not sure I always know how the prescribing thing works!)
circlehealthgroup.co.uk/con...
Yes he has sent a letter to my GP recommending future treatment etc.
My GP did say she would only prescribe Buprenorphine on the back of a neurologists recommendation.
Not sure if he prescribes directly however you do not need a GP referral to see him.
Depends on GP surgery. HipHop73 was recommended Buprenorphine by Dr Murphy but his GP refused completely to prescribe it. Dr Murphy has to ask a colleague who lives near HipHop to write a monthly prescription and HipHop collects it.Madness. But if you have a difficult GP, you will probably have to find another surgery that will act on a neurologist's recommendation.
Yes my husband saw him last month, and we agree with everything you've said. He is superb and so empathetic. My husband has had great results, so far 🤞, from Buprenorphine.
So good to hear that, I feel like Buprenorphine is my last chance at getting some relief.
Good luck 👍
I am so pleased for you. You are so very lucky to live near enough to an obviously brilliant consultant. Hope you get on well with the buprenorphine! 🤞🏻
I'm delighted for you.
So encouraging to hear that news.
Did he prescribe sub lingual pills or patch? If patch, be aware that several people on here have reported it stops working at day 4 or 5. It doesn't last the 7 days. If that happens, ask Dr Murphy for more patches and replace at day 4/5 OR ask for sublingual pills.Side effects can all be resolved.
Nausea responda to medical cannabis. Sweats can be reduced by adding a small dose of pregabalin at night. Anxiety/ panic can be helped by pregabalin or trazodone.
They do settle after a few months as your body adjusts.
Sublingual, I didn’t want the patches.
Thank you for your advice
Good luck. It completely transformed and saved my life!3.5 years later & I still get 24/7 relief.
I sometimes forget I have RLS!
What do you do when the suboxone gives you panic attacks and insomnia?
For panic attacks I added 50mg pregabalin on the email advice of top RLS expert Dr Mark Buchfuhrer (.he answers all emails for free very quickly).After a few weeks I reduced to 25mg. Now I take a tiny dose of 12.5mg because it also helps sweats.
For opioid induced insomnia, 50mg pregabalin should also help OR try trazodone.
He is on 1200 mg Horizant. Does it work differently than Pregabalin? Or should he get off the Horizant? He stopped the Suboxone due to the panic and insomnia
That's a real shame because it completely eliminates all RLS for most people.Horizant is gabapentin enacarbil, in.the same Class of drugs as pregabalin but with slightly different methods of absorption and different side effects.
In my case adding a small dose of pregabalin stopped the anxiety/panic within days.
If it stopped ALL RLS it is well worth trying again and adding trazodone or diazepam. They both counteract the opioid alerting/panic.
But I was able to reduce the pregabalin down to 12.5 mg after a week and my panic attacks had settled.
The insomnia is more difficult as ths alerting can be troublesome. But I suspect trazodone might help or clonazepam ( although that can cause daytime drowsiness).
My doctor is STUPID, STUPID, STUPID !!!
coming off Pramipexole 
Shout at the Moon
My old mate Restless.
To Cautious
