compression boots: Hi RLS Has anyone... - Restless Legs Syn...

Restless Legs Syndrome

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compression boots

Turkeylife profile image
7 Replies

Hi RLS

Has anyone tried or use compression boots ? Footballers and athletes use them for muscle leg pain. A friend used them while pregnant for RLS she said they did help but her symptoms of RLS was mild.

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Turkeylife profile image
Turkeylife
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7 Replies
Joolsg profile image
Joolsg

I tried Restiffic feet compression devices when I had severe drug-induced worsening on Ropinirole.It distracted me for a few minutes. But so did whipping my legs with a stick.

They may help mild RLS but won't do mych for anyone suffering augmentation on dopamine agonists.

Some people report that therapulse has helped them and it has a money back guarantee.

Put therapulse in the search box.

SueJohnson profile image
SueJohnson in reply toJoolsg

My laugh for the day - "so did whipping my legs with a stick"🤣🤣🤣

Turkeylife profile image
Turkeylife in reply toSueJohnson

Hi Sue,

I have been on Gabapentin Amarox 300mg x 3 hard capsules per evening, 2 hours before going to sleep, for 1 month now and they do not seem to help my severe RLS should I give the medication some more time but I am so sleep deprived it is ruining my life.

I was taking pramipexole tablets 0.088mg x 4 per night sometimes 6 per night depending on the severity of my RLS for years but they stopped working for me. I take 2 pramipexole per night now to help wean myself off them.

Please advise and very grateful for your help.

SueJohnson profile image
SueJohnson

That is not surprising. You withdrew too fast down from 4 to 6 tablets to 2 tablets so you are suffering withdrawal symptoms, The normal schedule is to reduce by one half of a .088 pill every 2 weeks and wait until your symptoms settle before doing the next reduction. Some have used kratom or cannabis temporarily to help. If you can get a low dose opioid that would be even better.

Gabapentin won't help much until you are completely off pramipexole and your symptoms have settled.

And you are taking gabapentin wrong. If you need more than 600 mg take the extra 4 hours before bedtime as it is not as well absorbed above 600 mg. If you need more than 1200 mg, take the extra 6 hours before bedtime. If you take magnesium, even in a multivitamin, don't take it within 3 hours of the gabapentin as it reduces the absorption of the gabapentin. If you take calcium don't take it nor calcium-rich foods within 2 hours for the same reason.

900 mg is a low dose. You need to ask your doctor for 100 mg capsules. Then when you are off pramipexole and your symptoms have settled, increase it by 100 mg every couple of days until you find the dose that works for you. According to the Mayo Clinic Updated Algorithm on RLS: "Most RLS patients require 1200 to 1800 mg of gabapentin ."

Have you had your ferritin checked? If so what was it? That is the first thing a doctor should have done. You want your ferritin to be over 100 as improving it to that helps 60% of people with RLS and in some cases completely eliminates their RLS and you want your transferrin saturation to be between 20 and 45.

If not ask your doctor for a full iron panel. Stop taking any iron supplements including in a multivitamin 48 hours before the test, don't eat a heavy meat meal the night before and fast after midnight. Have your test in the morning before 9 am if possible. When you get the results, ask for your ferritin and transferrin saturation (TSAT) numbers. If your ferritin is less than 100 or your transferrin saturation is less than 20% ask for an iron infusion to quickly bring it up as this will help your withdrawal. If you can't get an infusion, let us know and we can advise you further.

Check out the Mayo Clinic Updated Algorithm on RLS which will tell you everything you want to know including about its treatment and refer your doctor to it if needed as many doctors do not know much about RLS or are not up-to-date on it as yours obviously isn't or s/he would never have prescribed a dopamine agonist at Https://mayoclinicproceedings.org/a...

Turkeylife profile image
Turkeylife in reply toSueJohnson

Thank you so much Sue you are a God send

fritzb43 profile image
fritzb43

RLS is in the brain, people. These hardware "solutions" never work. I have increased my intake of magnesium (as MgO) and I'm sleeping better at night. 500 mg afternoon evening and at bedtime. Give it a try - MgO is cheap.

b1interest profile image
b1interest in reply tofritzb43

Does that mean you're taking 500 mg 3 x? I'm glad it's making such a difference for you : )

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