Neupro patch - how do I get off it?

[BPN28]

I was put on the 3mg patch in June and only get relief with an addition of 30mg codeine. I then have no symptoms and sleep all night.

I have a sleep clinic appointment next week. My ferritin is low. I know I should ask for an iron infusion. What else should I be asking?

[SueJohnson]

You can do the reduction in one of 2 ways. Using a 1 mg Neupro patch cut it into sixths. The easiest way is to draw lines on it. This will equal the .25 mg reduction since 1 mg of Neupro = 1.5 mg ropinirole,. Or you can switch to ropinirole. Multiply the dose of Neupro you are taking by 1.5 to get the correct amount. Since you can get ropinirole in .25 tablets this is the easier way to reduce.

[Joolsg]

As you were on Pramipexole for 20 years before Neupro, you should NEVER have been put on Neupro.

Here's an ACTUAL expert, not a UK doctor with zero knowledge of RLS, talking about why Neupro will NOT work for you.

youtu.be/Tz7g9sxS0_I?si=u4b...(Not working as expected?)

So, start following advice on here, because your doctors have advised you badly by switching you to another dopamine agonist which will quickly stop working and cause severe Worsening, just like Pramipexole.

3 options. Either go back on normal release Pramipexole and reduce by half a 0.088 pill every 2 weeks, or switch to normal release Ropinirole and reduce by 0.25mg every 2 weeks or cut 1mg patches in quarters and reduce by a quarter every 2 weeks.

Here is the RLS-UK withdrawal schedule and iron therapy pages. Print off both and show to your doctor, with the video I have attached.

rls-uk.org/useful-resources

[Joolsg]

healthunlocked.com/rlsuk/po...

I posted about the dangers of Neupro yesterday.

[SueJohnson]

I forgot to add to reduce by this amount every 2 weeks.

[BPN28]

thanks very much .