One Small Setback...: I reported to the... - Restless Legs Syn...

Restless Legs Syndrome

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One Small Setback...

vikkitennis profile image
10 Replies

I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with many minimal nights of a spasm or two.

Last night I neglected to take the methadone, as we ushered an event at a local arena. We returned home past midnight, and I discovered my error. I promptly took one dose, then followed with the other 30 minutes later. The spasms returned, and with a vengeance. I stretched for 10 minutes, and the spasms left.

It made me realize I am not out of the woods, and don't neglect to take the medication. I see the movement disorder doctor in less than two weeks, and I am curious about his thoughts.

I am enjoying reading the posts from the forum, and what a crazy disease this is taking all of us on. The viewers reporting back are so helpful, and I appreciate you and this fourm.

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vikkitennis profile image
vikkitennis
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10 Replies
ChrisColumbus profile image
ChrisColumbus

Keep taking the meds, and good luck!

RLSLearner profile image
RLSLearner

vikki, you would describe you symptoms as spasms not just the urge to move?

vikkitennis profile image
vikkitennis in reply toRLSLearner

yes, jerkiness in the legs, not the urge to move. Neurologist said it isn't limb disorder, but what do you think?

teakabeagle profile image
teakabeagle in reply tovikkitennis

That sounds like PLMD IF YHEY ARE JERKY MOTION AND NOT SOASMS. Is the jerky associated with a Charley horse cramp in the calves?

vikkitennis profile image
vikkitennis in reply toteakabeagle

no, they are occurring at 4am, causing me to stay awake, and then rise for the day. There was some cramping last week, but I attributed that to the extreme exercise in very warm weather Arizona is experiencing right now.

teakabeagle profile image
teakabeagle in reply tovikkitennis

Sounds more like PLMD than spasms if you aren’t getting Charley horse sensation. PLMD can occur with or without RLS. Have you ever had a sleep study which can diagnose that. Perhaps Baclofen will help. It works at the spinal cord level so not a many side effect as Gabapentin which is often prescribed.

I have RLS.and PLMD and the Gabapentin and Baclofen unfortunately did not work for me. Buprenorphine has worked well for both.

Nyana profile image
Nyana

I have great experiences with 5 mg methadone, two times a day!

vikkitennis profile image
vikkitennis in reply toNyana

Yes, I take it twice at night. Unfortunately, it was my error not to be on track with the medication. I haven't increased it back to where it was, 20 mg.

TheDoDahMan profile image
TheDoDahMan

My experience is exactly the same as Nyana describes. And like you, Vikki, whenever I neglect to take my dose, my symptoms will eventually protest until I rectify the oversight.

vikkitennis profile image
vikkitennis in reply toTheDoDahMan

I will ask the neurologist at this month's appointment for a ferritin blood panel.

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