I just went out the the RLS Foundation website under Treatment --> Medications and THEY HAVE CHANGED IT !!!
It no longer has the 4 listed FDA approved drugs on separate lines with a blank line between each one giving the impression that the DAs are the way to go.
See rls.org/treatment/medications
😀😀😀😀😀😀😀😀😀😀😀😀😀😀😀
Well done: while they said that they were going to do this, I'm sure your email expedited it!
that’s great, I was looking at it a couple of weeks ago and was shocked to find DA as the first line of drugs, so glad they updated it.
great result!
That's such good news 🙂. Does anyone know if this could result in a change to the NICE guidelines in the UK?
"One does not need to slavishly follow what the colonies do"
Double irony intended!😝
🤣
Joolsg and RLS-UK are working on it, but NICE aren't nice (just my personal opinion!)
A very slow and arduous process I should imagine but at least with RLS updating their guidelines, it's a help as I think GP's do look at this too.
The interesting bit here is the iron infusions as it's virtually impossible to get one approved if your iron levels are in the 'normal' range.
It seems to me that some (most?) of the UK establishment is resistant to following guidance and advice from the US, including in the case of RLS that from the Mayo Clinic - and potentially this from the RLS Foundation. Some individuals will take notice if it's drawn to their attention.
As you say it remains difficult to get iron infusions on the NHS for anything other than anaemia. And even 'experts' like Prof Chaudhuri at Kings believes that the potential benefits of infusion for RLS are small and outweighed by the 'dangers'. A further US recommendation for "Intravenous iron treatment" is unlikely to change his mind.
But I know that Jools etc will continue the fight!
This is fantastic! Your letter did it.
That is great news Sue! I was quite astonished when I read that! Thank you for doing the leg work. It is greatly appreciated! My hope is that no doctor has read that in the meantime
That’s brilliant. Thank you for all you do in this regard.
Thank you Sue for all you do for us RLS sufferers. So grateful!
Good news.
Well done Sue, and a huge thank you for all you do for this community.
😀😀😀😀😀😃😀😃😃
Well done Sue, and thank you 🙏👍
Thank you!
Lexicon of Equivalent Patent and Generic RLS Medications?
Medications for RLS recommendations 
