Histamines and RLS

[Truthsword]

Hello Everyone,I sincerely hope you are finding the solutions to your RLS problems. It's been about 3 years now that the good doctors at the Mayo Clinic sleep department have been working with me to find a solution. I had to go off Requip after about 30 years. With gabapentin and Tramadol ,that was possible. But I recently saw a post on this site that mentioned a connection between RLS and histamines. My Dr. wanted me off alcohol coffee,chocolate...they are on the histamine list.

Anyway, if the original person who posted it could clarify about the diet he is on. No wheat for one thing. I'm beginning to feel like Jordan Peterson and his daughter. Who are on the carnivore diet with great results.

I currently take 300mg gabapentin nightly. But I would love to get off that completely because of groggyness and clumsiness.

God bless you all

Truthsword

[SueJohnson]

I can't help you with the diet but I can tell you something interesting. Caffeine can both cause worsening symptoms for some people and can help RLS for some people.

[Madlegs1]

I'd say Eryl might be your man!🤔

[Eryl]

I know very little about histamines other than that they can cause inflammation which I believe is the main cause of RLS. Inflammation can often be caused by foods whether or not they are regarded being linked to histamines. These foords are commonly refined carbohydrates (esp refined grains), refined sugars, refined seed oils and artificial preservatives (e.g.potassium sorbate)

I have eliminated my RLS by avoiding these inflammatory foods.

Take a look at this; youtu.be/nLkq3KOakBg?si=GrJ...(Not working as expected?)

[BeachGolfer]

I’m writing as a follow up to Sue’s comment. Though I have triggers of alcohol,sugar and simple carbs coffee actually helps me get back to sleep! Must be something in the coffee that overrides the caffeine. Also, I’ve been able to eat Extra Dark chocolate with Stevia instead of sugar. Wish you the best in figuring out what diet is best for you.

[Truthsword in reply to BeachGolfer]

Thanks for taking the time to reply. It is so great to get some relief after all these years!

[wildlegs]

I’m a 79 year old man in Wisconsin who has had RLS for 25+years. I’ve taken Tramadol for 15+ years and it works. The only problem i had was moving back home to Wisconsin from living 20 years in Florida. My doctor in Florida gave me 200 mg of Tramadol a night and it was 99% of a cure. In Wisconsin the most they’ll give me is 100 mg Tramadol and 1 mg of pramipexole . It’s probably about 90% of a cure. I still spend an hour or so at night standing while I watch tv. Five years ago Tramadol wasn’t an opioid but now it seems to be hard to get. My pharmacist doesn’t understand why either.

[HappyGreenBean]

I've been on a low histamine diet on and off for years. I'm on mast cell stabilisers and antihistamines (ones that don't bring on RLS) and it's done nothing for me. Just my experience though and I think others may be different.