When I saw my neurologist who is a Professor specialising in movement disorders last week he questioned whether I have RLS. His reasoning seemed to be that I had too much pain!! and also that nothing untoward had shown up on a brain scan nor on a MRI. I pointed out that RLS cannot be clinically proven and that I ticked all the IRLSG assessment sheet boxes. He ignored this. He said that of 500 patients on his books who had RLS none complained about severe pain. He suggested to me that what I was experiencing was functional movement disorder caused by accumulated stress. I take 1800mg of Gabapentin and 200mg of Tramulief and still have pain which is lessened by the Gabapentin. I would be interested to hear whether anyone else has had this suggested.
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