Kates 48 hour race… It’s done and I a... - Restless Legs Syn...

Restless Legs Syndrome

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Kates 48 hour race… It’s done and I am……..

Kakally profile image
29 Replies

Kates 48 hour race…

It’s done and I am totally and utterly shattered but happy as I did try very hard and didn’t give up which I thought I might do.

Thank you for all the support you have given and some money has been pledged to RLS-UK !!

If anyone didn’t want to donate any before , it is never too late snd I’m sure RLS-UK will be very happy to receive even the smallest amount…

Now for the figures … I walked 104+ miles in the 48 hours , which I was pleased with … (I was actually 1st and last in my age category , 65-69 , BUT being the only one in this age category that wasn’t hard !hahahaha! To put it in perspective, there was one amazing 79 year old lady Edda Bauer who walked 125 miles! She is the world record holder for her age group and I am not anywhere near her league. The winning lady ran about 220 miles and the winning man ran about 240 miles! Just staggering!

Anyway I turned up and had a fun (?!?😂) time. The winner of my ‘guess Kate’s distance sweepstake’ is RLS LEARNER who guessed 101 miles ! So congratulations ! And thank you very much for donating and joining in..

BIG LOVE to all us RLS folks and may we all get good relief from the mean torture.

Kate xx

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Kakally profile image
Kakally
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29 Replies
Joolsg profile image
Joolsg

That is absolutely fantastic kakally!!!I need to transfer the funds. Do I just send the donation to RLS UK?

Kakally profile image
Kakally in reply toJoolsg

Hi Thanks Joolsg! Yes please . I thought/hoped that would be easiest. It was a great weekend and if course I have been made to ‘pay’ for it with one of the worst night’s constant RLS everrrrr! 😳. Exercise even excess stuff that I occasionally do doesn’t make the RLS worse or better. But this time it was horrendous. I’m thinking maybe my body is telling me to keep to the slight less extreme distances 😂😂. 1 day on from the end of the race and I’m sort of back to normal…phew!!. I hope all is well with you xx

Joolsg profile image
Joolsg in reply toKakally

That's a heavy price to pay. You're so right though. Heavy exercise brings on increased RLS. I hope it settles.All well on the RLS front for me. Buprenorphine is still giving me 24/7 cover.

Just have to sort the MS now. The MS fatigue is hitting me bigtime. Like walking through treacle.

I'm due to start a new chemo type therapy- Cladribine, but it reduces lymphocytes drastically and triggers shingles. I therefore need a vaccine. The usual NHS nonsense. No joined up care. GP won't give it unlesss neurologist agrees.

I need 2 Shingrix doses, 2 months apart and then I can start the new MS drug.

Rest now and let those legs recover. Hope the RLS settles and you get some sleep.

Kakally profile image
Kakally in reply toJoolsg

I’m glad there is a new drug.. a new choice for you with your MS. Various friends of mine have had the shingles vax gif different immunosuppression disorders, with minimal side effects. . I hope you are the same and that the Cladribine is pretty magic for you 🤞👍🥰

Joolsg profile image
Joolsg in reply toKakally

Thanks xx

Kaarina profile image
KaarinaAdministrator

Well done you, Kakally. You are a star. You did really well. Congratulations and huge thanks for undertaking this venture for charity. You must be very proud of yourself. I am proud of you anyway! I hope others are too and let you know by supporting you. Power to you! Hugs. 👍💪🏃‍♀️🚶‍♀️👏👏🌻🌻⭐⭐💛💛

Kaarina profile image
KaarinaAdministrator

Just made the promised donation to RLS-UK. Thank you again for doing this for us. You are one in a million. :)

Kaarina profile image
KaarinaAdministrator

If a few people gave up a little treat like a take away coffee or a bought sandwich and donated to RLS-UK or another charity in support of Kakally's run/walk that would be really awesome.💛🧡❤️💚💙💜

Kakally profile image
Kakally

Thank you very very much Deemarie1! How kind of you and helpful for RLS-UK! Yaaay!

pennygates profile image
pennygates

Hi Kakally, Many congratulations! l knew there was true grit in there. You are an inspiration!

Kakally profile image
Kakally in reply topennygates

Thank you very much pennygates and you were very close with your guess of 99 miles! I just had a last burst of energy (well sort of energy 😵‍💫) and pulled the total over the hundred mark to 104+), but thank you so much for your support and for taking part and so generously contributing to RLS-UK… ! 🤗

RLSLearner profile image
RLSLearner

Amazing effort. Now I guessed 101 miles...

Kakally profile image
Kakally in reply toRLSLearner

I completed 104+ miles in the 48 hours and your guess of 101 was the closest! Congratulations ! And so you get to walk away with the fabulous prize of online hugs from me and the joy of knowing you were very close and you have been very generous donating to your favourite charity. Thank you very very much. Here are the hugs all the way from Cornwall, England….👏👍😂

🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗

Kakally profile image
Kakally in reply toRLSLearner

And I genuinely wish you well with your RLS and hope it is very much under control or soon will be 🤗

careerSquirrel profile image
careerSquirrel

amazing! Well Done

careerSquirrel profile image
careerSquirrel

please let me know how I can donate to show support

Kakally profile image
Kakally in reply tocareerSquirrel

Thank you very much careerSquirrel. I am just asking people to donate some money either to RLS-UK or your favourite charity if you would prefer.

It is so great that we are supporting each ‘RLS-other’ in whatever ways we can

Genuine warm thanks. 🤗

Bowie4eva profile image
Bowie4eva

All done, Kakally!! Well done you! X

Kakally profile image
Kakally in reply toBowie4eva

Thank you very much Bowie4eva…! 👍🤗

Munroist profile image
Munroist

Amazing achievement. I think I can manage a little retrospective sponsorship.

Kakally profile image
Kakally in reply toMunroist

Thank you very much Munroist. That is very generous of you and I know the charity will be so grateful. We all need all the support we can get 🤗

Kakally profile image
Kakally

My partner thought our dog, Arch Stanton, deserved the medal for putting up with me and all my RLS behaviour 😂.

I agree ❤️🐶❤️

Sweetie brown hairy dog with medal in front of her neck
rlsagain profile image
rlsagain

Well done! 👏👏 So sorry to hear you’re suffering even more as a result of such an amazing feat and hope the dreaded RLS subsides soon. I don’t buy takeaway coffee or sandwiches but have sent a donation anyway to RLS UK as suggested by Kaarina!

Kakally profile image
Kakally in reply torlsagain

Thank you sooo much rlsagain. Yes my self inflicted extra-RLS-symptoms are beginning to settle 🤪.

That is very kind of you to donate to RLS-UK. I know they will be delighted as am I . I really hope your RLS is quiet and calm now 🤞. 🤗

martino profile image
martino

I think your total is very impressive. You are entitled to be very pleased. I will send RLS UK £10-sorry I can’t afford more

Kakally profile image
Kakally in reply tomartino

Dear martino

Thank you very much for your encouraging words and generosity to donate to RLS-UK. £10 is fantastic and I know they will be very pleased…

All the very best to you and I hope your RLS is very calm and ‘quiet’ 🤗

Merny5 profile image
Merny5

wow, that is amazing! I missed your post. Can I still donate on your behalf?

Kakally profile image
Kakally in reply toMerny5

Thank you so much Merny5!

Yes if you care to donate to RLS-UK or otherwise your favourite charity that would be kind and fun to join in now😁.

I hope your RLS is quiet and calm now. Thanks soooo much 🤗

Kakally profile image
Kakally

thank you ‘lanelna’ for your kind post and donation to RLS-UK 👍👏🤗

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