Dipyridamole - anyone taking?

[RLSLearner]

I s anyone here on this? Are you in Spain under Dr Garcia-Borreguero? Was quoted $1500 for a compounded script in Australia or can get it for 10c/ tablet from India. It sounds promising , but then many things do, hoping there is some experience.

[SueJohnson]

There are a some who have tried it and found it helpful. The most common side effect is headaches. At least 1 person said it went away after 5 days but didn't for others. Not everyone gets headaches. Take it on an empty stomach. Just curious. Where in India can you get it that inexpensive?

[RLSLearner in reply to SueJohnson]

pmaoverseas.com

[RLSLearner]

Yes headache seems to be common and there is a study showing it usually goes over a few weeks. "Everything" works for RLS for some people, for some time. Was hoping this was getting to be a bit more experience in the community. Was thinking of contacting Dr GB and see it it is a routine thing he uses still.

India has a huge pharmaceutical industry. I think I just Googled Dipyridamole India and '100' pharmaceutic sales companies popped up. Will grab their name for next post.

[LanaCSR in reply to RLSLearner]

I took dipyridamole for 3 plus years, and it worked GREAT for me without any side effects and fairly inexpensive at $26/month, 120 tabs. Good luck!!

[RLSLearner in reply to LanaCSR]

Lana - did you stop taking it because of the cost?

[WideBody in reply to LanaCSR]

LanaCSR Why did you stop taking it? I have stopped taking mine. It is $200 every three months for 300mg a night (4 * 75mg). I found 225mg to be an effective dose.

[LanaCSR in reply to WideBody]

I recently had surgery and was required to stop taking it a week before surgery. Several months before then I had been contemplating stopping taking it because I wasn't sure it was really working for me. So after my surgery, I decided to not go back on it if I didn't feel like I needed it, and I haven't needed to go back on it.

[WideBody in reply to LanaCSR]

I feel the same about not taking it. My RLS doesn’t feel as strong. It is certainly there, but it is very tolerable.

[LanaCSR in reply to WideBody]

What was interesting is that when I first started taking it, I really felt a benefit. Then it didn't seem to be helping after a couple years.

[WideBody in reply to LanaCSR]

Does your RLS feel as bad as it used to be? Mine doesn’t.

[Hidden]

This was my experience healthunlocked.com/rlsuk/po...

I'm in Australia and from memory it cost between $300 and $400 for a compounded script, 1 month's supply.

Personally, I'd be wary of ordering medicines online. It may well be legitimate, but may not.

[RLSLearner in reply to Hidden]

Yes very wary. India has a huge pharmaceutical industry - check the made in mark of any of your medications. My understanding is that the vast majority of this places are legit but would not advise it for anyone else.

[Doctorplacebo]

I will be starting it for the first time next week. Starting at low at 50 mg. I will let you know how it goes.

[WideBody]

I took Dipyridamole for about 2 years. It is an amazing drug for MY RLS. I stopped taking it about two weeks ago, because I don't seem to need it. Yes, I still have mild RLS, but I can get through it in 5-10 minutes. I am still sensitive to noise, but no where near as bad as it used to be.

I intend to write a report here shortly.

[Hidden in reply to WideBody]

I look forward to your report WideBody. It's always good to read of other people's experiences/experiments, especially when done for a sustained period.