Better the devil you know ...... - Restless Legs Syn...

Restless Legs Syndrome

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Better the devil you know ......

Simkin profile image
13 Replies

Thank you all for your incredibly helpful replies.I am just wondering if my first port of call should actually be to ask my doctor if I can increase my 10mg of oxycontin to a higher dose & then if that does not work I could ask to be switched to buprenorphine.

Have any of you lovely people had success on a higher dose of oxycontin?

If so how high?

Simkin

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Simkin
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13 Replies
Joolsg profile image
Joolsg

I wish I could respond positively. I was on 25mg Oxycontin over 24 hours and 150mg pregabalin at night. My RLS was still very severe.However, many do well on Oxycontin. Madlegs takes 25mg a day.

The average dose is 30mg a day.

Good luck.

Simkin profile image
Simkin in reply toJoolsg

Ah that is interesting & helpful.

Madlegs1 profile image
Madlegs1 in reply toSimkin

As jools says ,I'm on 25 oxycodone which covers adequately, unless I take triggers, when I get to be in real bother.

Simkin profile image
Simkin in reply toMadlegs1

I think I will see if Doc will up my 10mg before I think about changing opioids.I wonder what your triggers are.

I expect you will say alcohol but I do enjoy a glass of wine a few nights a week.

At age 73 I feel it is my treat.

Madlegs1 profile image
Madlegs1 in reply toSimkin

Your choice.

But alcohol is a major trigger.

I'm reckoning it's the sulphites.

Other triggers for me are raising agents - most biscuits, crunchy bars etc.

Artificial sweetener, colours and so on.

No reasonable amount of oxycodone will protect against those.

Again --- you choose.

Simkin profile image
Simkin in reply toMadlegs1

Oh thanks!!But I have tried not drinking wine & it seems to make no difference.

I am not a biscuit cake person.

I inherited rls from my father.

When I broke my foot & was in plaster for 6 weeks my rls vanished (although I still had a glass of wine).

When I was in bed with covid for 6 weeks my rls also vanished & obviously I did not feel like wine.

So six weeks with & six weeks without & the same result.

TheDoDahMan profile image
TheDoDahMan in reply toSimkin

If your symptoms get bad enough, are you thinking of plastering up your foot again? Only half joking!

Firenze1 profile image
Firenze1 in reply toTheDoDahMan

Plastered foot or covid - now there's a choice!! It's actually good to be able to laugh about this because if you didn't well, doesn't bear thinking about!Actually, I had a foot operation 18 months or so ago and also had few rls symptoms however I did take codeine for a while

Simkin profile image
Simkin in reply toFirenze1

You did make me laugh!!I reckon when you have something like a broken foot your body puts all its energy to healing it & naturally (& very kindly) gives you relief from rls.

Firenze1 profile image
Firenze1 in reply toSimkin

Yes, nature's way and all of that. Drastic action tho'!!

Simkin profile image
Simkin in reply toFirenze1

Yes I would not recommend it!

TheDoDahMan profile image
TheDoDahMan in reply toFirenze1

God bless our poppy-related medicines.

Simkin profile image
Simkin in reply toTheDoDahMan

Absolutely!!

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