I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later.
It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012.
Could there be a link between lack of testosterone and episodes of RLS?
Written by
Elouis
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I had the same problem when I went through the same procedures in 2021, but I put the RLS spike down to other meds I was receiving: starting statins after a TIA a couple of months before I started the hormone therapy; a colon regulating drink that I subsequently found - even in unflavoured variety - contained aspartame....
I started to get over the RLS symptoms when I came off both (with the agreement of my stroke consultant as far as the statin went).
These treatments overlapped the hormone therapy although that continued after I came off the statins and the RLS eased, so I don't *think* that the hormone therapy was problematic for my RLS - or if it was it was very minor compared with the statin!
Anyway, I hope your treatment was as successful as mine (BTW did you mean 2012 or 2022?)
Hi - funnily enough I am in a similar situation. I completed radiotherapy in February for prostate cancer and started the testosterone blocker about 7 months ago and have just started being bothered by RLS. Never had it before but i've been aware over the last few months that my feet were feeling numb and cold. I had started wearing bed socks but the symptoms have progressed recently. My doctor has prescribed pramipexole which I have just started so probably too early to decide if is helping. Sounds like a nice piece of research work for a student!
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