RLS

[pdpurdy54]

I’ve had RLS for years and it is I would say it is drug induced 90% of the time. I also have a movement disorder that has miraculously been helped with a new drug called Ingrezza. I was told not to take the mirapex. Well... forget it! I still get RLS bad when I take a muscle relaxer or anything to help me sleep. So I need it!!! But sometimes (most of the time) the RLS is so bad I have to walk or jump around and shake my arms... pathetic right?

[Allyp69]

My RLS started iny 20s when pregnant so wasn't taking any medication. But my mother had it.Not convinced about the connection with drugs for me.....

[LotteM]

Somewhat similar for me. My RLS started in my 20s, spontaneously and not during pregnancy. Although it played up much later during oregnancy and menopause. I take no drugs other than for RLS.

Quite a few drugs are indeed likely to induce RLS, such as antidepressants and antihistamines. See for a long list and info rlshelp.org treatment page.

[Noddedoffagain]

I have had it since my early teens and I was never given any drugs to help. In fact nobody took it seriously. My father suffered and sadly one of my children too. I have only been taking drugs for the past 15 years to get some relief from this dire affliction. It has definitely got worse as I have got older. For my family it is definitely not drug induced.

[junior19]

I get it worse when on certain meds. It seems to be worse when the meds are wearing off. My meds are painkillers and benzos.

[grandmahelen1]

My rls started early in my life. No one knew what it was. My dad when I was a young child used to rub my legs until I went to sleep. In my late 50's it started to really be a problem and the neurontin I was taking was increased to 2400 mg. That worked for a while, then I saw a neurologist and he put me on 1 mg of mirapex at bedtime. Wonderful, could finally sleep without tearing up the bed. I can see why folks sleep in separate rooms. After a while I started getting problems during the day, added a morning pill. Well in 5 years I'm up to 4x a day and 4 mg. Its working now but for how long I don't know. I definiately know if I vorget pill. I can't sit still. I also have essential tremor and periodic limb movement discorder. I'm going to be moving so I'm getting a new neurolgist and I want an answer about whether I'm showing signs of parkinsons. My PCP says yes I do, my neurologist says I don't and I see subtle indications that I do.

[rsears57]

Not pathetic, pretty typical of rls

[Hidden]

Nope, not pathetic at all. I find myself doing the same things when my RLS is bad. I also find myself stretching the affected limbs to the point of them hurting in protest, telling me that they can’t be stretched any further. I am also not nice to my limbs when massaging them and have bruises and red marks to show for it.

[TEAH35]

I've had RLS since childhood (now 65) never took any drug until diagnosed 15 yrs ago. Have been RLS free ever since.

[Graham3196 in reply to TEAH35]

What drugs are you taking?

[Fleur29 in reply to TEAH35]

I see this is an older post, but I'm also interested in which drugs you took.

[tweedy66]

I've been getting symptoms in my arms lately.....also in bed shaking arms, rubbing legs.....what a mess !!