Buprenorphine

[Retiredandrestless]

so I took my first dose of Buprenorphine last night. I started with 1 mg,that wasn't enough so I took the other half ( I have the 2 mgs) This stuff is amazing! Not a single jiggle of the legs! I'm going to drop to 1 mg tonight again and see.how that goes. I had to take half.a clonazepam for the,sleep. I haven't had any side effects,maybe because I was on hydrocodone before this. Hopefully it will keep doing its thing! Thank you all for recommending this.(and my dr. had no problem prescribing this)😉😊

[SueJohnson]

Terrific!

[Joolsg]

It is miraculous. The first night I took 0.4mg I slept 8 hours. 3.5 years later and I sometimes forget I have RLS!.It really is time for extensive, gold standard trials in ALL countries.

[Retiredandrestless in reply to Joolsg]

All doctors should give this to their patients that suffer from rls. I brought it up to my Dr told him on was on this great forum and so many people have said this was a miracle drug. He was more than happy to let me try it. I wish more drs would be like him 💕

[Joolsg in reply to Retiredandrestless]

So do I. We have an uphill battle. Xx

[707twitcher]

just a suggestion:

Rather than start a new post for updates that are closely tied to your previous post, just reply to yourself. That way the relevant posts are all linked together and easier to follow.

[Retiredandrestless in reply to 707twitcher]

Good to know,I'll do that

[Boldgirl45 in reply to 707twitcher]

the only thing is - if you've simply been an 'observer' of that post and not replied to it - you'd miss this update I think?

[Boldgirl45]

Does anyone know a good online private doc in the UK who would prescribe Buprenorphine?

[Percy1st in reply to Boldgirl45]

Could you please post this question as a new post rather than a reply cos I would LOVE to know the answer too!!!

[Boldgirl45 in reply to Percy1st]

I’ll do that !

[Joolsg in reply to Boldgirl45]

Professor Matthew Walker at Queen Sq, Dr Guy Leschziner at Guy's, Dr Robin Fackrell in Bath, Dr Chris Murphy in.Salford and Dr Jose Thomas in Abergavenny( but he can only prescribe to Welsh patients).Long waiting times, cost between £275 &.£350.

And you have to stand your ground and REFUSE dopamine agonists as they all still prescribe them. Apart from Dr Thomas.

[Claire_lc in reply to Joolsg]

I'm not convinced that Guy Leschziner would prescribe Buprenorphine. He's willing to give Targinact but stops short of Bup, despite acknowledging that it has 'helped some people'.

[Joolsg in reply to Claire_lc]

Thanks Claire_lc. The list is getting smaller.....

[Claire_lc in reply to Joolsg]

Yup. Depressing. But I'm going to write to him demanding that he changes his approach. Our experiences must count for something! 😤

[Joolsg in reply to Claire_lc]

👍

[Boldgirl45 in reply to Joolsg]

Thanks Joolsg!

[Jumpey]

I'm delighted for you.

[Doghorse]

It seems really difficult to get this issued in UK despite NHS say it's available, finding someone will to prescribe is the problem

[Purpleyam]

I'm so happy for you 💓, and no apparent side effects!

[Retiredandrestless]

The only problem I'm having right now is a little bit of insomnia. I do ha e klonipin that helps me sleep . hopefully this will go away in time