I am 63 and have had RLS since I was 17 yrs old in College. Like most everybody else, the RLS got worse over the years. When Ropenerol was brought to market I jumped all over it. Then the usual augmentation happened with burning feet, insomnia and the need to take more. I switched to Mirapex and quickly realized augmentation was going to happen all over again. Then I read a post on this forum about how an individual cured his RLS by using Dr. John Sarno's protocol as described in his various books. I jumped all over that. Before I was half way through the first book my back pain went away. By the time I had finished the 3rd book and doing the suggested work (journaling) my RLS was almost gone completely. I did ween myself off Mirapex by taking smaller and smaller doses by chopping the tablet into smaller and smaller pieces. And last, but not least, I started the RBTI protocol for getting the right calcium (the right calcium for one person may be the wrong calcium for somebody else) and minerals back into my body. RBTI stands for Reams Biological Theory of Ionization. Nobody is better at this than Challen Waychoff. RBTI uses the body's chemistry (analysis of urine and saliva) to determine what calciums to take and what foods to eat to return the body toward perfect health. By the way, RLS is not genetic because my identical twin brother has never had RLS a day in his life. Anyway, I only take a very tiny piece of Mirapex 1-2 days per week. Soon, I'll be taking no RLS drugs at all.
Joe Dispensa's book "You Are the Placebo" is a great read as well.
Well i have to correct you on RLS not being genetic. It most definately is for most people. if not then its Secondary RLS, from a underlying condition.
I beg to differ on the genetics part. They have isolated 13 genes, and 9 of them are the "really bad ones" to put it simply. You can now be tested for the RLS genes. One can have the gene and never have it triggered, it can remain passive for one sibling or family member. Just because your twin does not have RLS, does not mean it is not genetic. 70% of all RLS is genetic. My family, for example-both my sisters, me, my grandmother, father, both of my nieces, all 3 of their kids (2 boys one, girl) ALL have RLS. But, there are a lot of family members who have no sign of it. My mother does not show any symptoms at 91 yrs old, but all of her offspring and her mother have or had it and all of ours are pretty severe in symptoms. I have been studying RLS and managing RLS groups on and off line since 1996. I am very happy for you if you can get off those dopamine meds, not an easy thing to do. If one thing would work for everyone that would be nice, wouldn't it? But, most RLS IS genetic and it is neurological sleep related disorder. That is why most of the time, it follows your circadian rhythm, when the dopamine levels naturally drop in the evening, hence when most RLS starts. Whatever works! For now after all these decades, I have tried it all and I know what keeps me sane, and it is meds, plus other things that I do, combination therapy, so to speak. Oh, and, I have never been able to take most of the "normal" RLS meds as long as I have been diagnosed. I DO have years of journaling, and endless supply of piles of notebooks. I have food journals, med journals, migraine, pain, and RLS journals. My doctor appreciates them.
Um. Please supply some medically approved proof of this
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Medical approved proof of what.. ?
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That today is Sunday. What do you think I’m asking for proof of?
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Rude and uncalled for.!!
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So you don’t know what proof I was asking for then?
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I think what ever i had typed there was no need to reply the way you did. Maybe you need to read the rules on how to speak to members on here and its not with sarcasm .
I don’t want any and I mean any connection to this group especially to my email account . Miss “Administrator “ Nothing ever again ! Temperamental foolishness and Woe is me nonsense . Take me off your list
Well, start at the RLS Foundations, UK and US for info on genetics and RLS, Johns Hopkins- the RLS Quality Care Center, The National Institute of Health. sciencedaily.com , are all good places to start. Just a simple google will get you thousands of hits now. it is proven and it is a fact on the genetics. Not ALL people carry the gene, about 30% have Secondary RLS, caused by taking certain classes of meds that CAN trigger RLS. Women get RLS while pregnant a good portion of the time who never had symptoms before. Sometimes the RLS disappears after the birth, sometimes it comes back years later. So, there are a LOT of reasons for about 30% of RLS cases. Genetics is heavy into the 70%. The genes have been named and documented, 13 of them, 9 of which are the BAD RLS genes, to put it simply. A simple genetics test can tell you if you have any of the genes, more than likely a person has way more than one of the genes who has Genetic RLS.
It's just my opinion that this post is an advert for something which has no credibility and I'd hate for anyone to be taken in by it.
Hello!
Thanks for posting! Is this by any chance Everett2? I sincerely apologize if mistaken; I just can't help but notice a similarity in topic from hers...
I’m with Manerva. How many books?!? Lots of monies worth it seems. If it sounds too good to be true....... And as many have already stated, it is indeed genetic. I don’t wish to be rude or dismissive but I always wonder about these miracle cures and if some of these people have ever really had RLS? Sometimes it is very upsetting and I think harmful to our cause as a whole. I know each RLS sufferer is an individual and it seems at this point unfortunately that no one treatment covers all of us but this kind of thing, in my opinion and I know I don’t know but the tip of the iceberg regarding RLS, is distraction at best and harmful and possibly dangerous at worst. Thanks for listening.
Anything that is too good to be true, is usually just, that too good to be true! Be careful...don’t be taken in especially if it involves your money!! Experts on RLS would be championing a new found cure and they are not so why?
Thank you so much for giving the details of how you have been helped. It is true everyone is different, but it might work for others as well. Whether it is genetic or not, the fact is so many are suffering from it and need help. Your success might help others. My mother had it, but my father only got it when he was 90 years, and only in his ankles. My brother has it too, and my daughter occasionally. I certainly don't think you put the video up as an advertisement, but to help others. Medication does help many people, but from all the letters on this site, they eventually augment and then there is only another drunk to try. Oh to find the true cause that every single person can get off their drugs and live a normal happy life. My heart goes out to all the suffering ones. I know what it is to suffer, as I have had it since I was a child, and now I am 78, and its worse than ever. Bless you and thanks.
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For now after all these decades, I have tried it all and I know what keeps me sane, and it is meds, plus other things that I do, combination therapy, so to speak. Oh, and, I have never been able to take most of the "normal" RLS meds as long as I have been diagnosed. I DO have years of journaling, and endless supply of piles of notebooks. I have food journals, med journals, migraine, pain, and RLS journals. My doctor appreciates them.
Mirapex
Help plz
Trying to drop Neupro and manage RLS without drugs
Starting pregabalin
Mirapex and augmentation
