Hi, I’m a new member and have been suffering with RLS since childhood, I’m now 42 and I honestly think it can’t get worse than this. My symptoms were only in my legs up until about two years ago and then it spread to my arms too. It affects every bloody inch of my life!! I have always tried to stay away from drugs for treatment but am now in such a desperate state that I know this is no longer an option. I feel lost, I have a new GP but as of yet haven’t visited as I’m afraid he/she will be unaware of the condition as my last GP was and this may tip me over the edge! My question is what are people’s experiences with synthetic dopamine and also is there a specialist in the uk who I could maybe contact for advice/treatment?
Thankyou in Advance
Welcome. The question is, what changed for you two years ago?
What medications are you on for other symptoms? Antihistamines and antidepressants can trigger rls.
Many foods and drinks can do the same.
You could look closely at your lifestyle and see if anything is affecting you.
Dopamines would be the first line medication, after addressing the above.
Before foing that, though, it would be worth getting your ferritin level checked- it should be over 75 and hopefully nearer 100. Get the actual number. Don't accept "normal"😁
I presume you have had other possibilities checked, such as peripheral neuropathy, and other issues I'd prefer not to mention.
Come back to us when you have looked at those.