Hi, sorry not been on for a while,
Life is busy eh and trying to deal with this has somewhat over taken my brain!!
I’ve gone from 6mg of ropinorole a day down to 3.5, reducing it by 0.5 a week.
It’s going ok ( the hardest bit is yet to come I’m sure)
I do have days and times where it’s bad but I just have to walk around, I am also now on 75mg of pragabalin twice a day, I also take 2 codine before bed along with magnesium tablets and I spray magnesium on my arms and legs before bed.
I go off to sleep no problem
At all but regardless of what time I go to bed I am
Awake 4am EVERY day!!
I have accepted this is the norm now 😴
I have another blood test tomorrow “iron study”
And my gp is emailing my neurologist to see if there is anything else I can take to help me through this.
I have tried tramadol and it woke me up rather than helped me sleep and I’ve also had zopiclone which I didn’t like as it didn’t help with the RLS and rather than be awake walking around dealing with it I was just like a zombie.
I have changed my diet and lost 12 pound in 2 weeks and I’ve reduced my Diet Coke intake to 1 can first thing in the morning.
Next week I go up to 100mg of pragabalin twice a day and I’m praying that once of ropinorole I am going to lead a normal life 🙏🏻
Pam I am so glad it’s working for you and your doing well 👍🏻
I wish all of us suffers the best and if I had 1 wish I would take it away from all of us!!