new here...anyone get RLS post surger... - Restless Legs Syn...

Restless Legs Syndrome

21,875 members15,620 posts

new here...anyone get RLS post surgery & anyone else with manganese deficiency...

Zedz profile image
Zedz
4 Replies

Just wondering if anyone else got their RLS post surgery? Hip replacement 10 yrs ago and I have had RLS ever since. Can't seem to pinpoint what set it off- assume low ferritin but did not lose alot of blood. Just wondering if anyone else had any similar experience.

Low ferritin- has been 10, now a whopping 20. I have also been told low folic acid, low manganese, low vit D. Doesn't matter how much iron I take, nothing seems to move on the blood test.

Written by
Zedz profile image
Zedz
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Madlegs1 profile image
Madlegs1

If you were on opiate medication post op, then that might have set you off.

Ferritin should be over 100 to be of any use for rls. But not guaranteed.

Zedz profile image
Zedz in reply to Madlegs1

I was guessing it might be the morphine. Trying to figure out how never had it before (except occasional as a child and in 3rd trimesters) and then suddenly a week later have it daily. Who knows if my ferritin was that low before surgery or not. Just can't seem to get that # out of the 20s

nightdancer profile image
nightdancer in reply to Zedz

Taking iron orally is a slooooooooow process. But, unless your ferritin is below 9, they do not like to do infusions most of the time. And, even if you get your ferritin up, it is no guarantee. Mine was 6, had 3 infusions, 1 week apart. Got mine up to 152, and it did not help me one bit. And, I assume you mean magnesium? Some people say it helps them, but it is best for leg cramps, which is not RLS. RLS is neurological, not muscular.

Zedz profile image
Zedz in reply to nightdancer

No actually meant manganese. I was able to contact someone who did a study as well. Very unusual to have a manganese deficiency but they also think linked in some way. How discouraging that your iron level did not help!! Sorry to hear that

Not what you're looking for?

You may also like...

New here - RLS, what else to try?

.very disappointing. My iron levels are okay (137ug/dL), but the ferritin has been on the lower...

New here, but not to RLS

I am 60 years old and have had rls for as long as I can remember. It is getting worse I do not want...

Has anyone had rls change to something else?

sleep ecg in a couple of weeks. I was wondering if anyone else has been down this road? Many thanks

Anyone find they get intense itching as a precursor to RLS?

had my RLS. Now, eating fruit again it seems to have flared up, as has skin itching. I'm wondering...

Has anyone else with RLS had issues with getting a GP to listen about potential Fibro symptoms too?

issues than they already are and low mood. Just wondering if anyone can give me some advice on...