I’m a UK male in my mid 30’s and have been diagnosed with RLS about 2 years ago, my symptoms cover most of my body. I have all the classic fidgeting, uncomfortable sensations in my legs but also have a whole range of abnormal sensations all over my body, which include crawling, tingling, etc.
My sensory sensations on my skin all seem exaggerated e.g. things touching my skin can be really uncomfortable such as clothes etc. Also the feeling of hot and cold on my skin are also exaggerated, especially in my arms and leg, which can at times feel really hot. The most unusual sensation I have is when anything metallic touches my skin e.g. belt buckle, as metal objects feel ice cold and this is extremely unbearable.
Does anyone else experience symptoms like this? I have looked at many websites but can’t seem to find much information on other people suffering like me.
I take 250Mg Pregabalin, which slightly dulls the sensations throughout the day and 0.5 Clonazepam to help me sleep, both of which I take at before bed. I have tried a lot of other different drugs, including the dopamine patches etc. without any success.
I am fearful that this condition might lead onto something more serious like Parkinson’s or Multiple Sclerosis and worry that my children may get this.
There is so little understood about this condition and the treatment so haphazard that I feel truly lost.