Hi everyone, I'm new here.
I'm very concerned about my husband. He has had RLS since I met him, that's 22 years ago (probably before). As strange as it might sound to you, we have never ever talked about it, and he has never ever complained about it. A year ago I noticed a lot of restlessness in his hands on top of what I already seen in his legs (thinking about it some of it was there before and I hadn't noticed how frequent it has been).
He would do strange things with his hands like putting them over his head with his elbows folded. He has shoulder twitches that are getting worse and more frequent. He sits in front of the tv and his shoulder just jumps up and down as if he is shrugging one shoulder. He has also developed repetitive motions, I think you can call them tics. Like he would pull his nose a lot, or brush is hand on his chin or run his hand on his face. I think these motions might be involuntary as he pulls his nose when he sleeps too. I understand that this movements are meant to release the tension that builds up and the need to move his hands. When he is driving it looks like he just cant sit still, switching hands on the wheel all the time. He can't stop going in loops over the movements I just mentioned. It seems like for some reason he cannot hold the wheel on 14 and 10 but holds it at the bottom with two fingers and occasionally his finger would jump open leaving the wheel. In addition I see his fingers moving on their own. He would sit still and his fingers just move. I see him sleeping on his hands or holding them firmly together over his head, or he would fold his wrist leaning on the back of his palm with his elbow held high in what seems as an unnatural and painful position .
At times I get really really scared seeing all this especially when being in the car with him.
A long time ago I have tried talking to him about his jumping shoulder and all the leg shaking and moving in the evenings, but he brushed me off. Again, we don't talk about it and he never complains but I see something is really wrong.
Has anyone experienced anything like it. does it sound familiar at all. I must add that it seems to go on all day long not only at evening or night. His tic especially worry me. I know that there is a connection between RLS and tics. I don't know how aware is he of them.
I wouldn't want him to take any drugs but would like him to try the vitamins, minerals and diet changes first. How do I get to talk to him?
Any encouragement would be highly appreciated.
Thank you for reading this far.