Reading Blokie and Raffs poems reminded me of a piece I wrote , i put it on here a couple of years ago but as we have many new members since then I thought some of you might like to read it
Hi my name is restless legs
I am invisible to others
They can't see me or hear me but your body feels me
I can keep you awake until you're exhausted
Remember when you had energy? In its place o have given you exhaustion
If you have something planned I can spoil it
If you are looking forward to something I can take that away from you
Yoi didn't ask for me but I choose you anyway
Maybe you have a family history of me or maybe kidney disease or Parkinsons?
Whatever the case I am here to stay
I can make an outing to the cinema or theatre pure hell
You want a long car ride, don't make me laugh!
Holidays ha ha I can spoil those before you even get there, I don't like travelling
Work -I can mess up that
You can pretend to others you have to keep getting up during a meeting or a meal because you keep needing the toilet or have to make a phone call but you can never fool me
You see it makes me laugh when you try to describe me to a non sufferer as I make it impossible
Yoi can buy whatever creams, lotions and potions you like as I am unbeatable
Your friends and family will listen until they get tired of hearing how I make you feel
Some will say things like 'oh its the cramp, your having a bad day, or 'well you're not getting any younger' but not hearing that you have had me for 30 years
They will say things like 'oh just stretch your legs and it will go away or just don't think about it'
Some will start talking about you behind your back while slowly you feel you are loosing your dignity trying to make them understand
You will be told'oh I know someone who had that and she took a paracetamol and she was fine
You might decide to up your game and see a doctor and I will grin as you try desperately to describe the impact o have on your life
The doctor will have no idea and put you on all sorts of medications
They might try you on sleeping tablets or antidepressants but they're no match for me
Sometimes they will give you meds that actually make me worse because I am sneaky
Are you too tired to exercise? That's me
Aching back and knees ? Yes thats me
Headache -my gift to you
Red , dry eyes 'I take the credit
Irritable ? Probably me
Sometimes I will lull you into a false sense of security and you will find a medicine that helps -your getting clever but not as clever as me
I will up my game , I will make you need to keep taking more and more
I will visit you earlier in the day, I will strike other parts of your body, your arms or neck or anywhere I please
When you come off these meds then you will realise just how evil I can be and you will need more and more drugs
Do not try to explain me or expect any understanding , or for people to understand how I impact on your life
The only place where you will get support ,help and understanding is from others who live with me they are the ONLY ones who will understand
MY NAME IS RESTLESS LEGS