Canary in a Coal Mine

Canary in a Coal Mine (working title) follows the lives of several remarkable people living with a Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome"), a mysterious and devastating disease.

They are forced to leave careers they loved, abandon the dream of having children, or face the prospect of being locked away forever in their homes and bedrooms. Worse still, most doctors, and sometimes those closest to them, don't even believe they're really ill.

And yet, surprising things can sometimes grow from these dark places. How would you begin to nourish your body if every food you ate, every object you touched had the capacity to cripple or heal you? How would you fill your life, and what would you toss aside, if you only had three hours a day to live it? What worlds would unfold before your eyes if everything you knew suddenly came to a grinding halt?

Canary in a Coal Mine is about the human consequences of a medical system that is ill-equipped to treat an illness that challenges its every assumption, the danger of ignorance, and the power of a name. It’s the story of a community of millions that to most of the world is invisible.


updates here

10 Replies

  • One more for my facebook LOL

  • Great post! The short film available through the link is interesting! I hope people take the time to watch this here and then spread the word! :)

    I will be spreading the word! I hope they meet their goal and much more! :)

    Thank you for this post!


  • Jen at the Sundance film festival was a positive sign that the film has worked out ok. Another film that spread the word here, a few years back was Voices in the Shadows showing the severity of the disease for those that still believed yuppie flu.

  • Thanks for this link, as well. :)

  • That's the first time I've seen someone who walks like me - it's reassuring to know I'm not the only wobbly woman!!! How reassuring :)

  • Do I look like that ? was the first thought when I saw her walk when usually keeping on my feet grabs all my attention.

    Reassured your not alone my wobbly walk gets better :-) before getting worse after sitting down.

  • Got to see the funny side, haven't we?! We should all get together and have an ME disco - LOL! Like the Father Ted OAPs football match!

    Did you see The Wright Stuff this morning? They did a piece on funding for ME, short but sweet (although I wanted someone to put a sock in Nadine Dorries and let someone who knew what they were talking about get a word in).

  • Laughing is better than crying I will look out for some stylish football boots when 97% get better as Nadine Dorries says ha ha

  • From 59.45 into the program until 1hr 14 (move the slider at the bottom of the picture using your energy for the part of the show of interest)

  • Getting the word out now is the time for going back at the FDA on Ampligen when the serious nature of been sick is not getting buried.

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