Patients battle for justice

[ringading]

Oxford University Press blog by Leonard A Jason

blog.oup.com/2015/09/patien...

[Effort]

Powerful statements describing injustice and politics depriving basic human rights.

Any name that can be taken seriously !

[Jonesbones]

Haggling over a name avoids the main issue of funding which is totally inadequate.

[Seascape in reply to Jonesbones]

Goundhog day I believe they call it or something sounding the same.

[Halflife]

Love Lenny J this time I have a problem clunky SEID that Cindy Bateman worked on gave us disease no syndrome a lookey likey tired no insurance payout kinda syndrome.

IOM put it straight when any medical practice see an ill patient treat them and work out what is going round as the suffering eases off not rocket science.

[Peter-J in reply to Halflife]

A good guy turned down IOM cortjohnson.org/blog/2015/0... had a chance and blew it.

[Ian123]

Arguments about clinical diagnosis against research cohort definitions have mired the lives of the ill and suffering long enough. Action not words are what is desperately needed in the here and now that is overlooked by academic squabbles.

[Arianne]

Doctors dont believe why will anyone go against that. First change attitude/education.

[KMC442]

International consensus was reached in 2011 solvecfs.org/international-...

Outside of those criteria its something else, this removes the dumping and deserting watered down diagnoses passed on now.

[Dunnlyn in reply to KMC442]

Hummingbird Foundation explains why:

M.E. is not the same thing as 'CFS,' 'ME/CFS' or fatigue

M.E. is not medically unexplained, vague, fatigue-based or untestable

A diagnosis of 'CFS' is always a misdiagnosis

'CFS' is a bogus disease category created for the benefit of vested interest groups

Everyone diagnosed with 'CFS' deserves a correct diagnosis finally - whether the disease they have is M.E. or, as is far more likely, something else entirely hfme.org/