Increase awareness with pressure for research meaction.net/strategies-of-... social networks including forums facebook twitter and email empower housebound activism for change.
Successful Petition Strategies : Increase... - Ramsays Disease
Successful Petition Strategies



Moving on from acceptance there is advocacy and activism in amounts suitable for all.
Identify with " many caretakers are already stretched thin, holding up the world with their bare hands" asking more support of this group simply unfair. I feel guilty asking for more support than basic living demands just me maybe.
Remembering Ingeborg Geuijen me-cvsvereniging.nl/memoria... worked with the Dutch group.
Almost slipped my mind an online translator is a must unless languages are your thing.
Social networks cross national boundaries a thunderclap spreads awareness
Petition asking for bio medical research and educating health professionals