As I wrote the title for this blog it occurred to me that it is a great, if corny, euphamism for dying. Anyway, enough of the dramatics.
I have been blogging on this site for quite a few months now and have found it informative, supportive, scary, encouraging and much more besides. Most of all it is understanding and compassionate. When I say 'it' of course I mean you, us, all the sufferers and carers struggling with PSP. Heartless, merciless, cruel PSP. From the moment I logged onto the site I felt comforted and understood and knew that I would survive Eddie's journey with him because of you all.And I hope in some small way that my comments and advice have helped someone out there, because you have certainly helped me.
As you may have read earlier Eddie died on Christmas Day and I have realised since then, to my surprise, that reading your blogs now really upsets me and so I'm going to unsubscribe from the site. But I'll still think of you all, and hope for you all, and as I am now doing, cry for you all. You feel like my friends and family but I'm going to say goodbye.
Take care and have courage.
Love to you all.
SheilaN
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SheilaN
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I know exactly how you feel. I did not go anywhere near any PSP websites for a few months just to get away from it. It is difficult to get away from the memories of this illness, but eventually you have to try to move on and get on with the rest of your life. Good luck to you.
Dear Sheila..Wise and wonderful words...I think you have had more than your fill of PSP....Time to move on to happier pastures....You have clearly been a massive help to many suffererers and carers of this hideous condition, therefore it is only right for you to strive forward and make the most of what ever precious time we have on this planet....I wish you love and happiness..
Hi Sheila. Yes I saw that you lost your Eddy on Christmas Day and I'm so sorry for your loss. I haven't been on this site for too long but as you have pointed out it is extremely helpful in so many ways. I'm sending you healing and love and hope you can move forward and have a good life. You definately deserve it.
May lighter days and happy memories go with you Sheila, we all wish you the very best for the future. Maybe one day you may visit? good luck and take care.
Sheila - you are a lovely lady and we will miss you and your blogs, but you are doing the right thing, peace, contentment just two of the emotions i hope will come your way.
God bless you Sheila. I have followed your blogs over time and fully understand that you now need time to be free of reminders of this heinous condition. I wish you good luck and happiness and contentment in your future and thank you for all the empathy and understanding you have shown to all of us who use this site.
Shelia, We understand but I must say that those of us in the "fight" need the help of those who have gone before. Just think, if you can share one insight, idea, thought, etc. and it helps one person who is fighting PSP how wonderful that would be. I for one hate to see knowledge leave this group and each person who departs means less courage is imparted to us in the "fight". Having said that, you have do do what you have to do. I for one will remain in this group long after my wife has ended her fight with PSP.
I just wanted to thank you for your advice and wisdom shared here. Sometimes the caring people who share the journey with others provide so much more than the professionals really can. I continue to learn as I move along with each new symptom and phase of this disease, so as you leave us just know that you have helped many along the way. Take care of yourself, as I am sure you will need to find yourself again after all the time spent as a carer. Bless you!
Big hugs it's so hard after they get to peace to continue with reminders of the illness but now nearly two months on I find it good to help people and it brings me some comfort but u have to do what is best for u. Love and hugs
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BE HAPPY NOW it time for you and forget pain and fill you with nice things, bye 
Ranting time about a confusing time
Eye movement problem
