Folks - Just to say thank you for your support - You don't know how much you have helped.
Mom passed away peacefully towards the end of January. She had been diagnosed with PSP approx 2 years ago at the age of 81.
Your posts helped me understand the various changes that would occur throughout the journey of PSP.
From balance difficulties through to concentration, eyes being closed through to muscle control and ultimately swallowing difficulties. All your posts have helped me understand what to expect next. Thank you for sharing them.
To those who have been newly diagnosed I plead with you to make the most of what you have now. I regret not 'encouraging' mom to go on the cruise she always wanted and damn the expense! Live for today as the future will change... and I am sorry to say it may not be for the better...
Sorry to write something that no one wants to hear / read but please do not hold back on trying to enjoy yourself - One life... Live it!
Once again thank you for the support.