Gp is very budget aware

[jzygirl]

I have just had Brians medication delivered I am so hopping mad over the tight fisted gp surgery. Dietician has added pro-cal shot to the list useing 120ml a day so we get one 250ml bottle for the month and because we now have that we not getting the complan... not that we got enough to last the month anyway. I feel like going in the reception area and saying very loudly I'm sorry that my dieing husband is such a drain on your budget but do you think you could increase the amount of life sustaining drinks just untill he gets his peg in the new year. God I hope I haven't got to rely on the gp to supply the feed for the peg or there's no way Brian will survive on the amount that will be allocated by our gp. Rant over. Janexx

[Georgepa]

You rant you have every right to - get your Dr round to your house and ask him to explain himself let him see how it is on the ground not from the comfort of his consulting room . I can't tell you how lucky we are with our practice - they can't do enough . Our Dr even dropped by just to see if we were managing after my op - she's brilliant so give yours a good kicking they get paid enough > Outraged Georgepa !!!!!!!!!!!!!!!!!

[Georgepa]

You rant you have every right to - get your Dr round to your house and ask him to explain himself let him see how it is on the ground not from the comfort of his consulting room . I can't tell you how lucky we are with our practice - they can't do enough . Our Dr even dropped by just to see if we were managing after my op - she's brilliant so give yours a good kicking they get paid enough > Outraged Georgepa !!!!!!!!!!!!!!!!!

[Georgepa]

You rant you have every right to - get your Dr round to your house and ask him to explain himself let him see how it is on the ground not from the comfort of his consulting room . I can't tell you how lucky we are with our practice - they can't do enough . Our Dr even dropped by just to see if we were managing after my op - she's brilliant so give yours a good kicking they get paid enough > Outraged Georgepa !!!!!!!!!!!!!!!!!

[Georgepa]

You rant you have every right to - get your Dr round to your house and ask him to explain himself let him see how it is on the ground not from the comfort of his consulting room . I can't tell you how lucky we are with our practice - they can't do enough . Our Dr even dropped by just to see if we were managing after my op - she's brilliant so give yours a good kicking they get paid enough > Outraged Georgepa !!!!!!!!!!!!!!!!!

[Georgepa]

I am so cross on your behalf I have hit the reply button 4 times by mistake !

[jzygirl in reply to Georgepa]

Oh georgepa thank you for hitting the reply button several times it has made me laugh. I think I'm like a tiger protecting her cubs when it comes to Brian. Even with the prescription for the comlan wich is for 24 sachets and he has 3 to 4 sachets a day you can see that they are not very generous Janexx

[Hidden]

It's so frustrating Jane isn't it. Sometimes you just have to rant at the GP too! I made an appointment to see my mum's gp and sat in her surgery until the prescription was altered. Have you spoken to Brian's dietician about this? Mum's dietician arranges feed for her peg/pump, and any changes he makes are sent to the gp, who has to act on them. Once Brian gets his peg, it should go through Nutricia who delivers to you. GP still has to sign prescriptions but you shouldn't have to be involved in this. I also wholeheartedly agree with georgepa - get your GP to visit to see what living in our world is like. Chris x

[Heady in reply to Hidden]

A GP visiting and then understanding our world, that's a novel thought!!!!!

Lots of love

Heady

[loppylugs5]

So far we have no complaints about our GP and find dispensary very helpful.I really am not a sexist but I do suspect that people tend to feel that women are natural carers but if a man takes the role they are heroes.Really glad Georgepa is getting the attention but would that same GP come if the wife was looking after the husband?Jane do you have a complaints/sugestion box at your surgery? do you have someone weighing Brian?Des is weighed every 2 weeks by the district nurse.Good Luck with your Rants everyone!P

[Georgepa in reply to loppylugs5]

I have to say that I do believe she would - she is incredibly sympathetic to my wife's condition and has called number of times to spare my wife atrip to the surgery . Georgepa

[NannaB]

I'd be hopping mad as well. In fact I was when on two occasions we had prescriptions that were well below what was required. I returned the repeat prescription sheet to the GP with a note attached asking if I was supposed to request more weekly as what he had given us would only last that long. Within a day a months supply had been given. On the second occasion I did the same but it turned out that the chemist had given us all they had, enough for a week, but hadn't told us it wasn't the full prescription. Last month we were short as well so I went to the chemist when passing, and the same thing had happened. It's just another aggravation to add to all the others but I do hope it soon gets sorted. They have to supply enough for your husbands needs.

Nanna B x

[GillJan]

Is there a complaint procedure you can make with the Surgery Practice Manager. Usually they will take the time to talk to you, sort through the problem and reassess the situation. Hope you can. I feel so blessed to have the GP we have, she makes fortnightly contact with us at the moment as it is early days for us and she wants to be sure she is on top of things right away and that I am coping.

[Heady in reply to GillJan]

Gosh, you are lucky! Ours pretends he knows about PSP, but obviously hasn't a clue. Our PSPA co-ordination has phoned him to ask if he wants any information, which I think he has accepted. Still don't think he has read it though! Never once has he asked how we are coping, if there is anything he can do to help. Our last visit, I asked him to refer S to our local hospice, he whispered to me, that was for terminally ill people with Cancer! I told him I wasn't coping, but that fell on deaf ears. He did refer us though, S starts on a 12 week course of one day a week, when we get from South Africa.

Sorry about typing, HEALTHUNLOCKED are looking into the problem, but have yet to put it right.

Lots of love

Heady

[wifemo in reply to Heady]

Good luck, Heady - hope you will notice how different the care is from a hospice as they really do understand the problems.

Mo

[Heady in reply to wifemo]

Thanks Mo,I'll let you know!

Lots of love

Heady

[Gbodiham1939]

We also have no complaints about the level of support from our surgery .. although I sometimes feel that I have to take the initiative regarding Sandra's needs. I put this down to the fact that CBD is quite rare and many doctors will not come across a case in their entire career Sandra has been at home in a hospital bed since April (she does not wish to be hoisted ) and consequently the GP showed little interest in getting Sandra weighed ( a hoist could be brought in for occasional weighing). Graham (Odiham)

[gwend]

I would do it - go rant - life is too short - you and your husband need the help.

Amazing how sometimes people do not realise what it takes to be sick or care for someone you love who is sick. I see it with my mum and my dad who has PSP.

may the force be with you !

hugs

G

[Eurohop]

Know the feeling I was told the energy drinks are very expensive so are limited until I had a word with the Doctor who has now got me 16 a month. As for complain or build-up I was told they don't supply it great . It would be nice to get a list of what is available so we don't keep asking nd being told no that's not available. It's a joke. Perhaps we should just tell our other half they have got to conform to the norm and not h ave PSP.xxxxx

[wifemo]

Hi Jane -

If that's what Tony had, we used to get 24 at a time - our link was with a very helpful pharmacy.

Once the pharmacist realised it was an ongoing situation, he did pretty well in getting them in by the next day. Perhaps there's a greater demand now.

Has your GP actually visited you at home recently? We were also under the care of the (District now Community) Nurses. The dietitian was also part of the Community team, as were the Occ.Health and Speech Therapist.

West Norfolk being rural, the Community team seem to be reasonably organised and work well with the GP. I think Tony was lucky with our choice of GP as he has a good reputation locally.

Keep up the good fight!

Mo